Category: Childhood Disintegrative Disorder

I’m losing my son to Childhood Disintegrative Disorder

This was a very difficult video to record. I did my best to hold it together but talking about Childhood Disintegrative Disorder and how it’s impacted my oldest son, Gavin, is incredibly painful. CDD is a very rare and regressive form of Autism. A child will develop typically, hitting appropriate milestones and then one day, …

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Childhood Disintegrative Disorder is stealing our son from us

This post was started on Friday and has taken me this long to finish. It’s been a long weekend and I apologize for my absence. I was largely absent here today because I’m struggling a bit right now. I’m having a hard time coping with certain things at the moment, Gavin being one of those …

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New health concerns for 2 of my kids with #Autism 

I haven’t had the energy to catch you up on a couple of things that are causing us to be concerned, in regards to the kids.  I’ll start with Emmett because we learned something new about his fever disorder, while we were at the immunologist the other day.  She is the doctor that handles his …

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How many times can one father’s heart break? Too many. The answer is too many. 

I don’t feel really positive right now and that bothers me.  Unfortunately, the reality is that sometimes life just sucks. Life is unfair and cruel at times and it feels like Gavin has had a disproportionate amount come his way. Gavin’s still hallucinating and frankly, things are getting worse. He’s becoming very preoccupied with his …

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Gavin has been officially diagnosed with Childhood Disintegrative Disorder #CDD

It’s been a really long day and I haven’t felt like writing tonight because I’m trying to process everything. I was going to do a Periscope broadcast and I probably will tomorrow at some point because sometimes it’s easier to simply speak. I’m going to try to write this but my brain is sorta on …

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