How many times can one father’s heart break? Too many. The answer is too many. 

I don’t feel really positive right now and that bothers me.  Unfortunately, the reality is that sometimes life just sucks. Life is unfair and cruel at times and it feels like Gavin has had a disproportionate amount come his way.

Gavin’s still hallucinating and frankly, things are getting worse.… Read More



Gavin has been officially diagnosed with Childhood Disintegrative Disorder #CDD

It’s been a really long day and I haven’t felt like writing tonight because I’m trying to process everything. 

I was going to do a Periscope broadcast and I probably will tomorrow at some point because sometimes it’s easier to simply speak. 

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I’m going to try to wrote this but my brain is sorta on overload at the moment,  so please understand that I’ll write something more coherent later. 

Anyway,  I didn’t want to talk much about this until I had spoken to my family first. 

I spoke to Lizze and most of my family.  I’ll try to talk to Lizze’s Mom again at some point to explain what’s going on as well. 

I just didn’t want people reading about this before I could tell them myself. 

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The image above shows his current and complete list of diagnoses. 

299.10 is the diagnostic number for Childhood Disintegrative Disorder and they are now forever burned into my mind. 

This diagnosis wasn’t all together unexpected because it’s been suspected since he first began regressing when he was about 3 or 4 years old. 

It’s one of those things that no one wants to diagnose because of what it means.… Read More