New health concerns for 2 of my kids with #Autism 



I haven’t had the energy to catch you up on a couple of things that are causing us to be concerned, in regards to the kids. 

I’ll start with Emmett because we learned something new about his fever disorder, while we were at the immunologist the other day. 

She is the doctor that handles his fever disorder, as well as Gavin’s Immunodeficiency, everyone’s asthma and seasonal allergies. She also handles Elliott food allergies. 

When it comes to Emmett’s fever disorder, we have been chasing this thing since he was roughly a year old. 

Fever cycles consist of many different and evolving symptoms. What we refer to as a flare up, presents with mouth sores, joints that are hot to the touch, massive mood swings and sometimes a fever. These symptoms are constantly evolving and while he would previously run fevers in the range of 103°F – 104°F, lately the fevers have been low grade. 

One of the things that was seriously looked into was the cause of his joints getting hot. 
The initial thought was juvenile rheumatoid arthritis. Upon several visits with rheumatology, everything checked out. The big thing they look for is a high sed rate or erythrocyte sedimentation rate. In layman’s terms, this means rate of inflammation in his body. 

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Avia Batya

::hugs::

Rebecca Magliozzi

I’m sorry. Praying for you guys.. Quercetin and vitamin C is good for lowering high inflammation. My youngest had that and we managed to bring it down using those two things. If you can get either of those, even vitamin C gummies into him, it would help. My son has PANDAS and Lyme disease and tick borne infections. This was a year before they found those infections.

Maria Hall

My son has jia and rarely does his sed rate bounce up even in active flare. Some people just don’t. I don’t always show typical signs of inflammation either. Dr. Toth with also do a c reactive protein. That’s where they usually find signs in me. As for the vision disturbance, that could be an emergency situation. You might want an ophthalmologist not an optometrist if you don’t have one already Akron children’s has a good one we’ve seen.

Maria Hall

My son has jia and rarely does his sed rate bounce up even in active flare. Some people just don’t. I don’t always show typical signs of inflammation either. Dr. Toth with also do a c reactive protein. That’s where they usually find signs in me. As for the vision disturbance, that could be an emergency situation. You might want an ophthalmologist not an optometrist if you don’t have one already Akron children’s has a good one we’ve seen.

Rob Gorski

Gavin normally goes to the Cole Eye Institute at the Cleveland Clinic but they’ve said we can move to Akron if we’d like.. We see Dr. Lawhawn… ☺

Rebecca Magliozzi

I’m sorry. Praying for you guys.. Quercetin and vitamin C is good for lowering high inflammation. My youngest had that and we managed to bring it down using those two things. If you can get either of those, even vitamin C gummies into him, it would help. My son has PANDAS and Lyme disease and tick borne infections. This was a year before they found those infections.

Rob Gorski

Thanks Rebecca.. ☺

Avia Batya

::hugs::

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