Feb 12 2019
It’s been a busy morning already. Lizze didn’t sleep very well. She’s in a lot of pain and extremely nervous about her second Infusion today. It’s very hard to be hopeful when you’ve been in so much pain for so long and nothing has ever been able to help. I’m trying to get her to …
Feb 12 2019
It’s been a really, really long day and I’m going to make this a quick update. I want to let you know how the first day of headache infusions went for Lizze. It’s been a mixed bag for her. For starters, the Cleveland Clinic is amazing and the staff made Lizze feel very comfortable with …
Feb 11 2019
Lizze has been hooked up to the IV for about two hours now. There’s no room for me to sit with her so I’m hanging out in the lobby until she’s done. I’m allowed to walk back and check on her but I have to be very, very quiet because everyone in there is dealing …
Feb 11 2019
It was a very chaotic morning and I regret a great deal of it. We were trying to get everyone out the door and nothing was going right. The boys were being kids and I simply had no patience. Elliott is at that age where we aren’t sure how much is Autism, anxiety and depression …
Feb 10 2019
This is going to be an absolutely crazy week. In fact, it’s going to be one of the most challenging weeks we’ve had in recent memory and we’re going to need all the help we can get. Thankfully we have that help in the form of our parents, on both sides. I meant to get …
Jan 03 2019
Lizze and I made it to the Cleveland Clinic’s Neurological Center for Pain. We actually made it 10 minutes early and considering traffic, that’s a miracle. Lizze and I have set a goal to find at least some answers but also some relief from her constant, crippling pain. We need to get the medication situation …
Jan 03 2019
Lizze is in rough shape today. This migraine is relentless and you can see that it’s taking its toll on her. She’s absolutely miserable and there’s nothing I can do to help her. It’s so bad she can’t be touched. There’s not anything I can do but get her to her appointment today. The pain …
Oct 21 2018
It’s been a couple of days and I’ve still not gotten around to updating you on Lizze’s appointment at the Cleveland Clinic. As a quick reminder, she was at the Neurological Center for Pain, seeking help for her migraines. Lizze went into this appointment with very, very low expectations because for the most part, she’s …
