My wife begins her 2nd day of headache infusions at the @clevelandclinic

It's been a busy morning already. Lizze didn't sleep very well. She's in a lot of pain and extremely nervous about her second Infusion today. It's very hard to be hopeful when you've been in so much pain for so long and nothing has ever been able to help. I'm trying to get her to go into this as positive and hopeful as possible because state of mind makes a difference. It's a big ask and I understand where she is right now but I just want this to work for her. I view the fact that yesterday's infusion brought her migraine from a 10 to an 8 as a very positive thing. Unfortunately, the last medication that they pushed undid all that progress and made things worse. I understand…

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The first day of headache infusions had some painful drawbacks

It's been a really, really long day and I'm going to make this a quick update. I want to let you know how the first day of headache infusions went for Lizze. It's been a mixed bag for her. For starters, the Cleveland Clinic is amazing and the staff made Lizze feel very comfortable with the process itself. She was very nervous going into today and was relieved by the kind treatment she received. ☺ I mentioned in the previous post that Lizze was feeling a little better as the infusion was progressing. Her migraine went from a 10 to an 8 and that's a pretty big deal for her. Unfortunately, the final medication they pushed caused a very negative reaction and her migraine went to an 11 as a…

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2 hours into her 1st headache infusion at the @clevelandclinic

Lizze has been hooked up to the IV for about two hours now. There's no room for me to sit with her so I'm hanging out in the lobby until she's done. I'm allowed to walk back and check on her but I have to be very, very quiet because everyone in there is dealing with migraines. I'm allowed to bring her food but there are restrictions. Nothing can have a smell or make noise. Many people with migraines can be triggered by certain smells and so they are very careful what's brought into the room. Everyone in this room, including my wife, is resting in recliners and separated by a thin curtain. The lights are low and it's so quiet, you could probably hear a pin drop, literally. The…

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I was an awful parent (by my standards) this morning and I feel horrible

It was a very chaotic morning and I regret a great deal of it. We were trying to get everyone out the door and nothing was going right. The boys were being kids and I simply had no patience. Elliott is at that age where we aren't sure how much is Autism, anxiety and depression or how much is normal teens stuff. All I know is that I needed cooperation and he was not being super cooperative. He would dig his heels in and I just wasn't having it this morning. Rather than continue to offer him patience and guidence, I yelled. I wasn't really yelling at him but rather at the situation and that was just as bad. I'm not talking simply raising my voice but actually yelling at…

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Please keep my wife in your thoughts and prayers as she heads to the @ClevelandClinic for most of the week

This is going to be an absolutely crazy week. In fact, it's going to be one of the most challenging weeks we've had in recent memory and we're going to need all the help we can get. Thankfully we have that help in the form of our parents, on both sides. I meant to get to this on Friday but I didn't. Lizze was approved for here headache infusions and they begin in the morning. We will be making the sometimes three hour round trip, four days in a row this week. This makes things very complicated because the boys need to get to and from school each day. We also have Gavin who wouldn't do well on these trips. Thankfully, Gavin will be staying with Lizze's parents until Thursday…

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Praying the @clevelandclinic can help my wife

Lizze and I made it to the Cleveland Clinic's Neurological Center for Pain. We actually made it 10 minutes early and considering traffic, that's a miracle. Lizze and I have set a goal to find at least some answers but also some relief from her constant, crippling pain. We need to get the medication situation straightened out immediately. Wish us luck but also know that she's in good hands with the Cleveland Clinic.. ☺

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Helplessly watching as my wife suffers is absolutely awful

Lizze is in rough shape today. This migraine is relentless and you can see that it's taking its toll on her. She's absolutely miserable and there's nothing I can do to help her. It's so bad she can't be touched. There's not anything I can do but get her to her appointment today. The pain makes her sick and unable to eat or sleep. I'm hoping that we can find something that will help her get some relief. We have an hour plus drive to Cleveland today and she's not in a place to endure that. Unfortunately, it's the only option and it's important that we get there. I fucking hate that I can't help her with this. No one should have to live in this much pain and if…

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How the @clevelandclinic gave us hope

It's been a couple of days and I've still not gotten around to updating you on Lizze's appointment at the Cleveland Clinic. As a quick reminder, she was at the Neurological Center for Pain, seeking help for her migraines. Lizze went into this appointment with very, very low expectations because for the most part, she's without hope that she will ever live a day without pain. I get where she's coming from and it breaks my heart to see her go through this. That said, I'm carrying the touch in regards to hope because I cannot accept a reality in which she can't find relief from her migraine. She deserves to exist without pain and I will keep working towards that end. We arrived a bit early but only had…

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