Holy Shit! Gavin hit a MAJOR milestone tonight

Every once in awhile, the kids do something that completely blows me away. They always impress me but sometimes, what they do is a real game changer. Tonight, was one of those night for Gavin. For the last five years or so, Gavin has been receiving IVIG Infusions in order to treat his Common Variable Immunodeficiency. In all the hundreds of infusions, Gavin has always hated the needles and who can blame him. He's never liked them but at the same time, he's never complained. ☺ Over the years, he's slowly taken more and more responsibility for his infusions. He's gotten to the point where the only thing he wasn't able to do was put the needles in his belly. He has been to uncomfortable doing that and that was…

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The @GPSTC just did something amazing for Gavin

Awhile back, I received an email from someone representing The Georgia Public Safety Training Center. They had found my YouTube channel and began watching the videos I've uploaded over the years. There was one in particular that they were very interested in and it was one of Gavin having a total meltdown/tantrum. The video was a lengthy one and showed me interacting with Gavin as we worked through this particular episode. It is important to note that this particular video was more of a tantrum and less of a meltdown. The video shows Gavin experiencing one of these episodes and me dealing with it. The GPSTC wanted to utilize the video to help train the police, fire and EMS in Georgia, how to interact with people on the Autism Spectrum.…

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Gavin’s day just got way better

Gavin has something to look forward to this afternoon. He's going to be joining my parents as they venture about an hour and a half outside of town, to retrieve my Grandmother and bring her back for Thanksgiving. He's so excited to surprise her with his presence. lol They'll be leaving this afternoon and returning in the evening. I hope he has fun and enjoys the time with his Great Grandmother. ☺

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Gavin’s driving me crazy

It's no secret that I'm worried about Gavin for a great many reasons. I love this kid to death and will continue to do whatever I can to help him live the best life he possibly can. At the same time, I'm a human being and have limits to what I can deal with. Having said that, Gavin is driving me absolutely crazy. I'm stressed out enough with everything going on around me and that puts a serious strain on the limited resources in which I use to cope with life. Gavin has spent the bulk of his life as an incessant talker and unfortunately, that's something that seems to be getting ever more incessant. I don't know what you call a significantly increased level of incessant talking but it's…

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Gavin’s labs have come back

Gavin's labs have finally come in and it's better than bad news. His Absolute Neutrophil is up to 2.8 from 2.4 last week. This is good news because the numbers are moving in the right direction. At the same time, we still have no idea what's going on. We're still waiting to get into Hematology because this is the best chance we have to identify what's going on and how we can address it. I feel a sense of relief at he moment because his members are good right now and will probably be good for the next couple of days. I can't let my guard down because we have learned over time, that with Gavin, what goes up must come down. It's like we're waiting for the proverbial other…

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Gavin’s not doing well tonight

I waited all day and the lab results never came in. I spoke with the doctors office a few times and they have assured me that they will email me the results as soon as they get them. Being the overprotective, borderline paranoid parent I am, I continued to follow-up until they closed. Unfortunately, that didn't get me anywhere but frustrated. I know in my head that waiting until tomorrow isn't the end of the world but when Gavin goes to bed not doing well, it's like pouring gasoline on my worry fire. I'll be following up in the morning and hopefully find some answers. I'm pretty fucking stressed out but I'm managing.. ☺

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So far so good

All I can say is so far so good. Gavin's bloodwork is done and we're just waiting on the results. He got to spend time with his grandparents, which is awesome for all involved. I was able to get some work done, as evidenced by having written a few times already today. ☺ I'm working on the house and on the site today. As soon as Gavin got home, we setup his IVIG infusion and it's going good. He seems like he's in a better place today and I'm happy to see this. All I have left today is picking the kids up from school and getting Elliott to occupational therapy. I'm hoping to grab some sweet pictures of Elliott's session today and I'll share them later on. I have…

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Surprise Surprise

The wait for Gavin to have is bloodwork done about one hour and fifteen minutes. At about the one hour mark, Lizze parents showed up and took over waiting. They had texted me about hanging out with Gavin this morning and wanted to come pick him up from the lab. I was able to head home and they were able to spend some time with Gavin. That's a win win in my book. Now we simply have to wait for the results of his labs. This is the part I'm dreading. As many of you know, I hate when the only thing left to do is hurry up and wait.

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