The wait for Gavin to have is bloodwork done about one hour and fifteen minutes. At about the one hour mark, Lizze parents showed up and took over waiting. They had texted me about hanging out with Gavin this morning and wanted to come pick him up from the lab. I was able to head home and they were able to spend some time with Gavin. That's a win win in my book. Now we simply have to wait for the results of his labs. This is the part I'm dreading. As many of you know, I hate when the only thing left to do is hurry up and wait.

I wanted to share something really cool that Gavin did today. Actually, it's a couple of cool things. I don't want to short change him. ☺ This afternoon, Akron Children's Hospital delivered Gavin's IVIG infusion supplies. I physically received them and signed the paperwork. When I brought them into the house, I handed Gavin the inventory list and told him to make sure we received everything we were supposed to get. It was a slower process for Gavin in because he doesn't process things very quickly anymore. That being said, he went through everything, matched it up to the list and identified supplies we were missing. I knew we were missing a few supplies because they were out of stock and scheduled for delivery next week sometime. I didn't tell…

I know is there isn't anything that I can do but I'm really upset that Gavin's testing was canceled. The last time he had NeuroPsych testing was on 7/01/2014. I know that because I pulled his report. I thought it was longer than that but I guess not. There are a few reasons that this test is so important. The first is that it gives us a complete picture of where he is, how he thinks, what his capabilities are, where his weaknesses are and what we can do to help. One of the big take aways from last time was learning how Gavin's memory worked. He struggles with memory big time but at the time of his precious testing, they discovered that his brain is retaining the information but…