Gavin’s not doing good tonight

Unfortunately, Gavin is having a really rough night. He's not been able to fall asleep because he's not feeling well. The poor kid is battling tummy issues once again. He came downstairs a couple of times because his stomach hurt and he felt like he was going to vomit. I wish I knew what was going on because he's absolutely miserable. The only thing we can do is give him a Zofran and hope that eliminates the nausea. I'm not sure what's causing this but it's happening quite a bit over the last week or so. I don't know if he's dealing with a stomach bug or if it's something he's eating. Part of my concern is that I never got his lab results from Friday. I have no idea…

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He doesn’t remember and that’s concerning

We made a spontaneous trip to the park. Elliott decided he wanted to walk the track and I jumped at the opportunity. Gavin wanted to come along with us but I was concerned about his hip. I asked him if he thought his hip would be okay during the walk. He looked at me like I had two heads and said that his hips never hurt. At first I thought he was joking but it turns out he's serious. He doesn't remember ever having issues with his hips while we were walking. I can't tell you how many times he's had issues with his hips while on a walk. The fact that he doesn't remember is a bit concerning. He came with us and ended up doing okay, but we…

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Gavin’s latest Lego Creation

Gavin's been hard at work on a new Lego creation today. It's been a long time since he's been creative like this and I'm thrilled to share a couple pictures with you, per Gavin's request. ☺ He's calling this one that Clone Trooper Star Fighter. Can't imagine where the inspiration came from. 😁

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Awesome news

The boys are having a good day. No ones fighting. There's no screaming and I just feel really good about it. I absolutely love when the boys are getting along and the house is quiet. While we're on the topic of good news, guess what was found? That's right, my wallet. Guess who found it? That's right, it was Gavin. Gavin found my wallet. It was buried in a box of clothes. Turns out he didn't actually throw it away after all and I'm so grateful for that. ☺ I'm not sure if he remembered it was there or he just decided to look, but who cares. My wallet is back and I don't have to replace everything now. Awesome job Gavin.. You're a life saver. ☺

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How Gavin handled tonight is a blessing

Gavin had his IVIG infusion tonight because and it went pretty well. In fact, Gavin set the entire thing up, all by himself. The only thing he didn't do was please the needles in his stomach. This is a pretty big step forward for him. There weren't any side effects tonight and he didn't complain of being sick at bedtime either. The last few nights he's gone to bed not feeling well. It's nice for him to go to sleep without any discomfort. He's been sick on and off this week. Thankfully, nothing major occurred and we didn't have to go to the hospital. That is a true blessing. ☺

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I wouldn’t wish this on anyone

I'm still waiting for Gavin's lab results to come in. I hate these waits and I wish we could receive the results directly from the lab, rather than wait for the doctor to call. It's not like we need anything interpreted. I simply need to know what his numbers are. Waiting for answers like this is unbelievably stressful and I wouldn't wish it on anyone.

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I’m grateful he’s feeling better enough to sleep

Gavin had issues with reflux again last night before bed. Tums seemed to address the problem and he went to bed feeling better.  We have to get him into gastroenterology and have him evaluated again. Unfortunately, hematology comes first but we'll schedule gastro as soon as possible as well.  I'm hoping we can get hematology done before our trip. I'd feel much more comfortable if I knew what was going in before we left.  For right now though, I'm just grateful he's feeling better and is able to sleep.  

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He says he’s fine but he looks rundown

Gavin is finally up and moving. He keeps wanting to help out around the house, but I'm wanting him to rest instead. God love him for wanting to help out, but we need him to recover.  I will add that's he's sorta relentless in his quest to help out, so I may end up giving him a small task that will sorta let him help, while ensuring that he doesn't overdo it. ☺  He says he feels fine but he looks really rundown. I'll probably get his labs run in the morning to make sure everything is okay. The last thing we want is for his numbers to drop and us not know about it. 

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