We learned something today from Gavin, that seems sorta strange. He made it a point to tell Lizze while I was gone, and then me while we were dropping off the boys lunches.

Gavin informed us that he has been taking showers while he’s hanging out with my parents on Wednesdays while the boys are in school.

It’s not so much that he takes a shower at my parents house, cause that’s not a big deal at all. It’s more about the way he talked about it. He said that he asks if he can take a shower and they let him. Again, not a big deal and my parents aren’t doing anything wrong.

What’s weird about it is he doesn’t need a shower. He does that at home and there’s no reason for him to be asking to take one.

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Gavin woke up this morning and not feeling well. He was complaining of a headache and a stomach ache. I'm not sure what was going in but he decided to have a very light breakfast, and then go to bed. He's been up and moving around for a little while. The nap seems to have helped him feel better. I don't know if this is related to his meds but it's possible. At the same time, headaches and stomach aches are pretty common for him anymore. Either way, he's feeling better now and at the end of the day, that's what matters.

I thought it might be interesting to see where we will be staying in Florida, while Gavin has his biggest wish granted. We will be staying at a place called Give Kids the World. This is a place designed for kids with serious, life threatening health issues like Gavin. I looks like it's straight out of a fairy-tale book. Anyway, here's a satellite view from Google Earth. This isn't the whole thing but you get the idea. ☺

We've been noticing some behavioral changes in Gavin over the last twenty-four to forty-eight hours. They were more subtle at first but have become more obvious as time passes. One of the things we've noticed is Gavin's memory is worsening. It could be nothing or it could be something. He's forgetting how to do some very basic things like setting up his IVIG infusion. He's been doing this for years but yesterday, couldn't remember some of the basic steps. This leads me to my next concern, frustration threshold. Yesterday, Emmett made a joke that was very benign. He asked Gavin what time it was and when he said 5 PM, Emmett sang the five dollar foot long theme from Subway. It's sort of an inside joke and Gavin can get…

It's already been a long day and an extra long week. Gavin and I just got home from grocery shopping today and we actually did pretty good. We ended up about six dollars under budget, and that's always a good thing. Gavin did pretty good as well. He did have a few episodes though but he's okay now. By episodes I'm referring things like vision problems and he popped both shoulders carrying a bag of ice. He seems to be doing fine now, and I'm grateful for that. Elliott's in a pre-teen kinda mood and it's frankly, a lot bit unpleasant. Emmett's doing okay but doesn't have a high tolerance for anything today. This means that he's very easily pushed over the edge. Needless to say, there's a lot of…

Gavin spent the day with my Mom yesterday. Apparently, Gavin was experiencing some things that were concerning to him, and my Mom decided to sorta make a journal to keep track. It's entirely possible that these are unrelated to anything in particular. The list of his physical complaints included the following: Back pain Problems with his vision Leg pain (I think) There's more I believe but my brain is currently in overload and I can't remember the rest. It's really difficult to know what's what. These could all be random occurrences, and end up being nothing, or maybe they are signs of other things. None of what he was dealing with were new. Strictly speaking, these have all happened before. I'll get into more detail in the morning. For now,…