My brain is fried and my heart is broken

If there are any grammar errors, I'll fix them in the morning.  I can't keep my eyes open and I'm going to bed.   I'm going to try and sum up everything as best I can.  If this doesn't make sense to anyone, please know my brain is fried and my heart is broken. I'm doing the best I can at this point. Let me begin by saying that this was one of the most difficult appointments we've had in a very long time.  I'm really exhausted after today but I'll do my best to have this make sense. I also spoke to both sets of grandparents prior to writing this because I wanted to bring them up to speed before they read about it here. With that said, here's…

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Gavin’s not been feeling well lately

Recently, Gavin's been complaining of stomach aches and nausea. Yesterday morning, he wouldn't even eat breakfast because of this.  Gavin is very motivated by food.  He plans his life around breakfast, lunch and dinner.  Anyone that knows Gavin would probably not even believe me if I said Gavin didn't want to eat breakfast.  I don't know what the deal is but it doesn't seem to be bathroom related.  It also tends to come and go.  He might feel sick for a little bit but then it goes away, only to return later.  It's weird and we'll have to keep an eye on this.  It probably wouldn't hurt to see the pediatrician for a check up anyway.   I will say that Gavin went to bed without any problems popping up.…

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Gavin’s has me more and more concerned

I'm getting concerned about Gavin. While he's still doing really well, he's also cognitively slipping. I'm not sure how to really as plain what I mean... Okay, let's try this..  Gavin's current level of functioning is lower than it was 3 months ago. It's still relatively subtle but I'm noticing things throughout the day that are concerning. He's unable to perform more than one or two step tasks at a time. Even with that, he's often either not finishing or simply forgets what he's supposed to be doing.     He fell going up the stairs today because he was trying to take 2 or 3 steps at a time, even after I reminded him not to.  I seeing a great deal of impulsivity, where he's acting before he thinks.  Originally,…

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