Category Archives: Major Update




We got some amazing news from @myakrongeneral hospital this morning

We thought Gavin’s incredibly important MRI was canceled due to insurance denying the claim. Here’s what ultimately happened.







Massive update on my wife

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It’s been a really long time since I published an update on Lizze. There really isn’t a reason I haven’t written much about her specifically, I just don’t like to step on her toes cause she has her own blog to share her story. Every once in awhile, I think… Read more »







Elliott needed a chest x-ray this morning

Elliott’s appointment took about two hours and he did about as well as he does at any doctors appointment. Elliott has never been comfortable at the doctors, any doctor for that matter. He gets extremely anxious and that using leads to a meltdown, or at the very least, tears. In… Read more »







Major Update

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As I’ve said before, the decision as to whether or not we should push our trip back was between us and the wish organization. I also mentioned that we were going to wait until the end of this week to make a final decision on anything. I spoke with the… Read more »







A MAJOR Gavin update

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It’s been almost five days since we lowered Gavin’s Clozapine to 500 mg/day. Aside from Gavin incessantly talking, I haven’t noticed any changes in his behaviors. His Schizophrenic symptoms haven’t changed for better or worse. The only things we’ve been hearing about are body aches and vision problems, but those… Read more »







Major Update: All about Gavin 

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We have a lot of catching up to do in regards to Gavin. Now that the server is up and running, I can finally do that. Gavin had his immunologist appointment yesterday. He did really well on the trip up and back. Sometimes he struggles in the car but he… Read more »







Gavin had a major diagnosis change today

Gavin and I met with Dr. Reynolds this morning. Lizze wasn’t feeling well and was resting up so she would be better when the kids got home from school. Sometimes we have to divide and conquer.  Today’s appointment was basically supposed to be a followup, because we had discontinued the… Read more »