My thoughts Archives - Page 411 of 1481

Why #Autism Parenting blogs are SO important

There are always those people who don't understand or misunderstand the purpose of this site or my writing style. I wanted to provide some insight into the how's and why's because I've received a large influx of new readers and I'd like everyone to understand why I do this. I'm connecting with quite a few families that are just beginning their Autism journey. They're looking for a path, and I'm able to help provide them with a place to start and sanity as they move forward. When people are just beginning this journey, they feel very much alone. There are feelings of isolation and that no one understands. While some may not understand this, Special Needs parents find comfort in knowing they aren't the only ones depressed, frustrated, overwhelmed, imperfect,…

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February 22, 2017

Gallery / My thoughts

Pictures from our busy #Autism family day

I wanted to share some of the pictures from today. Included below are pictures from speech and OT to fun with our ferrets and running errands. These simply help give you some insight into what goes on in a typical-ish day for my Autism family... ☺

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February 22, 2017

Gavin / My thoughts

My son is missing his critical medications for the month

A large part of my stress load today is the result of Gavin's IVIG supplies never showing up. I was contacted on Friday by the supplier who said that Gavin's shipment is delayed because they have been unable to get refills from the doctor. They were going to fix this yesterday but that never happened. I spoke with Gavin's doctor today and they have never been contacted for a refill or it would have been done immediately. I believe them because we've never had a single issue with them in five or six years. The doctor's office also stated that Gavin current script covers him through May of this year and he doesn't even need a refill yet. They are currently working to resolve this and have checked in with…

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February 21, 2017

Emmett John / My thoughts / Sensory / Shoes and Socks

I’m heartbroken over forcing my son with #Autism to go to school today

I woke up exhausted, but in a good mood. That mood carried me through until it came time to get Emmett in his shoes and socks. Lizze worked for quite some time with him on being able to tolerate his shoes and socks. Unfortunately, despite her best efforts and massive amounts of patience, we never resolved anything for more that a few minutes. Emmett was okay with things until he got in the car and I began making the drive to school. At this point he's freaking out, screaming and ripping his shoes off again. This lasted the entire trip to the school and I wasn't in the best place to deal with this. When we got to school, I had to park the car because he wouldn't get…

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February 21, 2017

My thoughts

We have a problem that needs to be resolved today

If I had to describe how I slept last night, I would probably say shitty. I had a really hard time getting comfortable and would wake up because my back was killing me. Then at some point, both Elliott and Emmett took turns waking up. Despite a rough night, I'm actually in a pretty good mood. Lizze has an appointment this morning and Gavin and I will be walking while she's there. We have a full day of appointments ahead of us today, as well as some problems to overcome. The biggest one being the fact that we haven't received Gavin's IVIG infusion supplies yet and were unable to perform his infusion yesterday. Resolving this will be the priority today. I hope everyone is having a decent Tuesday thus far.…

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February 21, 2017

My thoughts

When to hold a special needs child accountable

I love having the boys home but I hate these four-day weekends because they totally throw me off the following week. All day today I thought it was Sunday because the boys were home from school. I'll end up being a day off for most of the week. 😁 Putting that aside, I think we had a pretty good extended weekend. We didn't have the money to really go anywhere but we took the kids walking, three out of the last four days. In total, we did about five or six miles and that's pretty good. Emmett was in flipflops because he wouldn't tolerate his shoes but he only had a couple of issues within that five or six miles, where his feet were bothering him. I'm hoping to make…

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February 20, 2017

Gallery / My thoughts

Here’s some pictures from today

It's been a really long day. I was up with a sick Emmett last night and now I'm up with a sick Elliott tonight. I promise I'll get some writing done soon but until then, I thought I would at least share some pictures from our day. These pictures span across most of the day and aside from Elliott being sick, everything was positive. I'll work on getting caught up after I get some sleep.

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February 18, 2017

Emmett John / My thoughts

Staring down the barrel of a four day weekend

The boys are off of school for the next four days. There's teachers conferences on Friday, and of course, Monday's a holiday. I'm not entirely sure what we're going to do with all this extra family time but we'll figure something out. I'd be lying if I said there wasn't a part of me a little worried about how this is gonna go because we're not off to a good start... A few minutes ago, Mr. Emmett came walking into our room, scared the shit out of me and proceeded to attach himself to my person because he wasn't feeling good. He's miserable and so we moved to the living room. Doing this provides him with some comfort, as well as the best chance of sleep.. ☺ Four days of…

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February 17, 2017