I wanted to share some of the pictures from today. Included below are pictures from speech and OT to fun with our ferrets and running errands. These simply help give you some insight into what goes on in a typical-ish day for my Autism family... ☺
A large part of my stress load today is the result of Gavin's IVIG supplies never showing up. I was contacted on Friday by the supplier who said that Gavin's shipment is delayed because they have been unable to get refills from the doctor. They were going to fix this yesterday but that never happened. I spoke with Gavin's doctor today and they have never been contacted for a refill or it would have been done immediately. I believe them because we've never had a single issue with them in five or six years. The doctor's office also stated that Gavin current script covers him through May of this year and he doesn't even need a refill yet. They are currently working to resolve this and have checked in with…
I woke up exhausted, but in a good mood. That mood carried me through until it came time to get Emmett in his shoes and socks. Lizze worked for quite some time with him on being able to tolerate his shoes and socks. Unfortunately, despite her best efforts and massive amounts of patience, we never resolved anything for more that a few minutes. Emmett was okay with things until he got in the car and I began making the drive to school. At this point he's freaking out, screaming and ripping his shoes off again. This lasted the entire trip to the school and I wasn't in the best place to deal with this. When we got to school, I had to park the car because he wouldn't get…
If I had to describe how I slept last night, I would probably say shitty. I had a really hard time getting comfortable and would wake up because my back was killing me. Then at some point, both Elliott and Emmett took turns waking up. Despite a rough night, I'm actually in a pretty good mood. Lizze has an appointment this morning and Gavin and I will be walking while she's there. We have a full day of appointments ahead of us today, as well as some problems to overcome. The biggest one being the fact that we haven't received Gavin's IVIG infusion supplies yet and were unable to perform his infusion yesterday. Resolving this will be the priority today. I hope everyone is having a decent Tuesday thus far.…
I love having the boys home but I hate these four-day weekends because they totally throw me off the following week. All day today I thought it was Sunday because the boys were home from school. I'll end up being a day off for most of the week. 😁 Putting that aside, I think we had a pretty good extended weekend. We didn't have the money to really go anywhere but we took the kids walking, three out of the last four days. In total, we did about five or six miles and that's pretty good. Emmett was in flipflops because he wouldn't tolerate his shoes but he only had a couple of issues within that five or six miles, where his feet were bothering him. I'm hoping to make…
It's been a really long day. I was up with a sick Emmett last night and now I'm up with a sick Elliott tonight. I promise I'll get some writing done soon but until then, I thought I would at least share some pictures from our day. These pictures span across most of the day and aside from Elliott being sick, everything was positive. I'll work on getting caught up after I get some sleep.
The boys are off of school for the next four days. There's teachers conferences on Friday, and of course, Monday's a holiday. I'm not entirely sure what we're going to do with all this extra family time but we'll figure something out. I'd be lying if I said there wasn't a part of me a little worried about how this is gonna go because we're not off to a good start... A few minutes ago, Mr. Emmett came walking into our room, scared the shit out of me and proceeded to attach himself to my person because he wasn't feeling good. He's miserable and so we moved to the living room. Doing this provides him with some comfort, as well as the best chance of sleep.. ☺ Four days of…
My wife and I face many challenges in our life. At the moment, one of those challenges centers around our youngest, Emmett. Emmett is eight years old and absolutely loves going to school. He loves learning and excels academically. Unfortunately, Emmett faces challenges that interfere with his ability to attend school sometimes. Between Autism, Anxiety, Sensory Processing issues and a rare fever disorder called PFAPA, we never know of what's going to happen. The sensory issues alone are more than a handful at times. Sensory issues impact people in different ways, and in Emmett's case, eating and wearing clothes present a multitude of challenges. The one that will keep him home from school the most often has to do with not tolerating anything on his feet. The other most common…