My thoughts Archives - Page 461 of 1481

I’m trying to recover from a massive meltdown this morning and I’m not doing very well

Starting your day off with a massive meltdown, is really a pretty shitty way to do it. I've lived through one such morning today. Shoes and socks are such an issue for Emmett. I was hoping this year would prove to be different but it hasn't, at least not yet. In fact, I would say his sensitivity to anything on his feet has significantly worsened. This morning was really bad and frankly, I'm in a horrible fucking mood now because of it. Emmett screamed in my face for most of the morning because we had to get him dressed. I'm not dealing with that really well today but at the same time, I'm not mad at Emmett because he has no more control over these sensory issues than…

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September 1, 2016

My thoughts

Let’s be honest about today

I'm absolutely spent. The boys went to bed without too much problem. We've had better bedtimes but I survived it and that's what matters. lol Gavin spent a large part of the day, chewing my ear off and talking about his games or latest missions. I'm gonna be really honest and say that a large part of me never wants to hear about any of this stuff again but that's not in the cards for me. I had dinner waiting for Lizze when she got home from class and we settled in to watch a few more episodes of Supernatural on Netflix. We've started watching the series all over again. Lizze went to bed before I did because she was worn out and I just needed some time…

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September 1, 2016

Medication Management / My thoughts

Some really good news on the medication front

Awhile ago I told you how we had to switch pharmacies. Our insurance company dropped coverage with Walgreens and so we had to move to a new Pharmacy. We originally began the move because of the issues we were having with Gavin's meds getting screwed up so often. The new Pharmacy has a way of dispensing the meds where they are broken up into the morning, afternoon, evening and bedtime then vacuum-sealed in a little package. This means that there's one pack for morning meds and one packet for bedtime meds. This makes it so much easier especially when you're managing so many different medications at one time. Unfortunately, when the boxes get set up, it takes some time to get everything worked out. This is because they have…

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August 31, 2016

My thoughts

I’m determined to make the best of today

I don't think we have anything going on today, aside from the kids at school and Lizze at her night class. I'm hoping to get some work done and maybe hit the treadmill if I'm feeling up to it. There's quite a few things that I have to figure out, none of which are easy but they need my attention. It's been really hard for me to focus on many of these things because I'm so overwhelmed right now. Anyway, I'm really determined to make the best of today because....well, just because.... ☺

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August 31, 2016

Gavin / Major Update / My thoughts

A massive and important update on the current state of Gavin’s mental health care

Disclaimer: I'm venting/ranting about the current debacle that is Gavin's mental healthcare. I'm really frustrated, angry and overwhelmed by all of this because there's so much at stake. When you read this, keep in mind that I'm experiencing all these emotions and this is my way of sharing our story but also processing all this as well. I heard back from the nurse at Gavin's psychiatrist's office this afternoon and we had respectful but totally unproductive conversation. This was one of those conversations where I'm not sure if I'm more frustrated now than I was before but I think I am. Yeah, I'm pretty sure I'm more frustrated now. After listening to what happened, this is what the nurse told me: I wish I could tell you that things…

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August 31, 2016

My thoughts

It’s almost bedtime

It's been a stressful afternoon and I'm counting the minutes until it's time for the kids to go to bed. We got back from Dr. Pattie's office a short while ago and just finished dinner. There's a few things to touch on tonight and I'll get to them in a little while. Right now I just want to get the kids down for the night and catch my breath...

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August 30, 2016

Gavin / My thoughts

Here’s what happened between last night and today in regards to Gavin’s psychiatrist

I made the call to our child psychiatrist's office today. I explained my frustration in regards to last night's debacle and did so in a very respectful way. I really do find that the bees with honey approach works best in situations like this. At the same time, I was firm and stood my ground. This kinds of stuff happens way too often anymore and with a child like Gavin, we need to actually see the doctor when we're scheduled to. I also realized that there's actually probably some protocol for prescribing Clozapine that requires face time with the patient on a regular basis. Anyway, someone is supposed to be calling me back shortly to sort through this and find a resolution. A reader pointed out in a comment…

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August 30, 2016

My thoughts

I had to practice some self-care today

I took a nap while Gavin was sleeping off his infusion and morning meds. Lizze was at an appointment and I being totally exhausted, I wasn't really doing any good for anyone. I'm still tired but I'm in a better headspace and that's important... The boys will be coming home soon and I still have a few things to do before that time. Taking a nap today was vital self-care and while it did take time away from what I was doing, taking care of myself is of equal importance.

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August 30, 2016