Our plans have changed

Our plans have changed and Lizze no longer has an appointment today. We officially have absolutely nothing on the schedule for today. Lizze and I are watching the news and the boys are playing in their room. Gavin is sleeping off his morning meds but otherwise feeling fine. ☺ I'm going to hit the treadmill shortly and try to get some walking in today.

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I need to make sure Gavin’s okay

Lizze has a doctor's appointment today and I'm thinking about making the boys walk the track with me while we're waiting for her. The boys and I will have about an hour to kill and that's more than enough time to take a trip around the track. The signals bad at the park so Pokémon hunting might not work out for them but they need to the exercise anyway. The only problem with this plan is of course cooperation. I'll definitely need cooperation to make this happen. I also need to make sure Gavin's okay as well. I haven't been taking him walking with me lately because his hips keep popping and that's very painful for him. Frankly, even we literally just walk the track without focusing on a decent…

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My goals for the next year

My plans for an extended morning walk were changed at the last minute because I forgot about having to do Gavin's bloodwork. I didn't sleep well the night before and that just added another obstacle for me. Anyway, I'm not giving up and whether I go to the track or hit the treadmill, walking will happen. What I'm working on right now is a balance between walking and strength training. I'm still building up to these things becoming habits and until then, it can be challenging to find the will power to push through. My goal is to be down to a healthier weight, further improve my cholesterol, build my endurance, and feel better being me. I'm not striving for perfection and I know I'm going to stumble along the…

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How Gavin handled tonight is a blessing

Gavin had his IVIG infusion tonight because and it went pretty well. In fact, Gavin set the entire thing up, all by himself. The only thing he didn't do was please the needles in his stomach. This is a pretty big step forward for him. There weren't any side effects tonight and he didn't complain of being sick at bedtime either. The last few nights he's gone to bed not feeling well. It's nice for him to go to sleep without any discomfort. He's been sick on and off this week. Thankfully, nothing major occurred and we didn't have to go to the hospital. That is a true blessing. ☺

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I wouldn’t wish this on anyone

I'm still waiting for Gavin's lab results to come in. I hate these waits and I wish we could receive the results directly from the lab, rather than wait for the doctor to call. It's not like we need anything interpreted. I simply need to know what his numbers are. Waiting for answers like this is unbelievably stressful and I wouldn't wish it on anyone.

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Nervously awaiting the results

I took Gavin to get his bloodwork done this morning. We are checking the cell line levels across the board. It's been about two weeks since his last labs were drawn and I'm nervous about learning the results. One of the reasons we're checking today is because Gavin was sick this week. He was actually really sick. He's also not been feeling well on and off throughout the week. I'm praying his numbers are maintaining because this poor kid has been through way too much and deserves to catch a break. We won't know anything for at least a few hours and that's going to feel like an eternity.

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Getting through this as a family

It was a rough night but we got through it. I was supposed to walk this morning but I forgot about Gavin's blood work. Instead of walking, I'm probably going to work out instead. We have no plans for today because we are trying to process the events from yesterday. I'm hoping that we can have a nice quiet day and find a way to get through this as a family. ☺

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Is there a monster at the end of my book?

I turned 39 yesterday and I want to thank everyone for all the well wishes. I truly appreciate it. I've never been one that was bothered by birthdays or getting older. If you ask Lizze, she'll tell you she sometimes feels like she has four kids. That being said, this is a big one and I'm not sure how I feel about it. Have you ever read There's a monster at the end of this book? It's a kids book staring Grover from Sesame Street. The story is about Grover thinking there was a monster at the end of the book. Each page was a desperate plea to get the reader to stop reading. If the reader didn't continue reading, pages wouldn't be turned and the end of the book…

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