Read more about the article The main reason we’re sticking to the indoors today
My thoughts

The main reason we’re sticking to the indoors today

We're going to be keeping ourselves indoors today, at least for the most part. We did pretty good this week in regards to getting outside. Lizze and I took the boys hiking twice and walking a few times in between. The hikes were decent hikes and had us tracking at least two miles, through the woods or wetlands. I wrote about the first hike here but still have to write about our second trip. Anyway, the temperature is supposed to be approaching 100°F, with a dangerously high heat index today. Last I looked, there were still high heat warnings issued. I figured it best we stick to the indoors today. One of the things that I want to do is work on the house and get things caught up a…

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June 30, 2018
Read more about the article I actually fell asleep last night for the first time in weeks
My thoughts

I actually fell asleep last night for the first time in weeks

I've been struggling with Insomnia for weeks now. I was simply unable to fall asleep until 4/5/6 AM and then I'd sleep until noon or 1PM, it's incredibly frustrating and I have tried everything, I know to do aside from prescription sleep aides. Anyway, last night I fell asleep about 1 AM and slept for 7 straight hours. I don't remember the last time I did this. I'm feeling pretty good today and I'm so grateful.

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June 30, 2018
Read more about the article The Good News – The Bad News – The MASSIVE Meltdown
Gavin / My thoughts

The Good News – The Bad News – The MASSIVE Meltdown

Let's cut to the chase and get the good news out of the way. I'm really hoping to get back on track, as we make our way through the weekend. I have a great deal on my mind but I feel that things will be getting better. Hope is so fragile but even so, it's incredibly hard to completely snuff out. Just when you feel like all hope is lost, it can find its way back into your life. That's not a bad thing. ☺ There was a door that closed on me today and it sucks. At the same time, as a result of that door closing, another one opened and it feels sorta like a last minute reprieve. What happened doesn't really matter and maybe someday I'll share…

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June 30, 2018
Read more about the article Dear #Autism Parents, I know how it feels
Autism Parenting Insight / My thoughts

Dear #Autism Parents, I know how it feels

The stress level in the house is pretty high today. I'm not sure exactly what this high level of stress stems from because it's probably not one single thing. We're worried about Gavin's immunological issues, countless growup issues that we shield the kids from, and all the other things that go along with being a special needs family. While we're getting out of the house on day trips, Lizze and I haven't had a night to ourselves in a long time. Any parent can go crazy without time to themselves. As special needs parents, we almost never get time to ourselves and the extreme toll it takes on our physical/emotional well being is very real. Lizze and I are burning out. In our lives, there is simply too much to…

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June 28, 2018
Read more about the article He’s almost missed 3 in a row and I’m worried
Common Variable Immunodeficiency / Gavin / Immunology / My thoughts

He’s almost missed 3 in a row and I’m worried

We are very quickly approaching the Gavin hasn't had an IVIG Infusion in over a week time frame and that's making me exceptionally nervous. Since his first infusion all those years ago, he has never gone this long without one. He's never missed three in a row and tomorrow will mark the third missed infusion in a row. I'm going to follow-up today and see if there is anything at all, that I can do to move things along. Realistically there isn't anything I can do but I feel better asking anyway. I'm worried.

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June 28, 2018
Read more about the article 2 very important, but slightly delayed updates
Gavin / My thoughts / Updates

2 very important, but slightly delayed updates

I meant to share this eariler but frankly, it still isn't finalized and nothing has actually changed yet. That said, I finally heard back from Gavin's immunologist about the issues with his GAMMAGARD. They hadn't reached out because they were still trying to get everything approved. The got everything approved but insurance screwed up and approved the wrong pharmacy. You can't get these things at just any pharmacy. The pharmacy has to agree to certain terms and there's a lot of red tape. Approving the wrong pharmacy doesn't do us any good because everything is at our pharmacy. I don't know if that makes sense. Basically, insurance made a mistake and the doctor has not be able to reach them to get it fixed. Calls aren't being returned, at least…

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June 27, 2018
Read more about the article My youngest just hit double digits
Emmett John / Happy Birthday / My thoughts

My youngest just hit double digits

Our day was fairly nonstop and I didn't get a chance to post this eariler. Better late than never. Emmett turned 10 years old today and he had a great birthday. We try to plan far enough in advance that we can pull things off. Anyway, Emmett is obsessed with Nerf Guns and he got what he calls the ultimate Nerf Gun today. Apparently, we did good. We had a busy but mostly low key day. We decided to celebrate his birthday in the early afternoon. It was pretty simple but it made him happy and that always feels good. We had ice cream cake before he opened his birthday presents. There were a few appointments this afternoon but we were done about dinner time. I cooked a couple pizzas…

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June 27, 2018
Read more about the article The countless reasons why my life as an #Autism Dad is so hard
Autism Parenting Insight / My thoughts

The countless reasons why my life as an #Autism Dad is so hard

As Autism parents, we all live in different worlds because Autism impacts our lives in very different ways. Some people have it pretty good and life is manageable, while others literally struggle to make it through each day. Many others fall somewhere in the middle. I fall into the category of struggling to make it through each day. I can't remember a day where I would sit back and say to myself, it was a really easy day today. In my life, easy days don't exist. I have an eighteen-year-old with the capacity of a five or six year old and that's anything but easy. Life isn't meant to be easy for anyone. If things are too easy, we can become complacent, and perhaps take things for granted. When things…

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June 26, 2018