As Autism parents, we all live in different worlds because Autism impacts our lives in very different ways. Some people have it pretty good and life is manageable, while others literally struggle to make it through each day. Many others fall somewhere in the middle.
I fall into the category of struggling to make it through each day. I can’t remember a day where I would sit back and say to myself, it was a really easy day today. In my life, easy days don’t exist.
I have an eighteen-year-old with the capacity of a five or six year old and that’s anything but easy. Life isn’t meant to be easy for anyone. If things are too easy, we can become complacent, and perhaps take things for granted. When things are too difficult though, we can end up crushed under the weight.
Multitasking is part of my everyday life. My life requires multitasking to a degree that my brain hits overload and simply can’t process things anymore. That’s not a good feeling.
My day usually revolves around an ever-growing list of things that absolutely need to get done but rarely do because I end up spending my time, running around, putting out fires.
If it’s not a medical crisis, it’s struggling to work, meet financial obligations, maintain my marriage, my sanity and continue trying to cope with the constant barrage of new problems. Triage is always the word of the day. Limited everything means that I have to put my efforts where they can do the most good for the greatest amount of people. That translates to having to make very difficult choices, with very real consequences.
My home is made up of five people, four are on the Autism Spectrum, three battling depression, two have serious medical issues and one with very fragile physical/emotional health. There’s never a shortage of things to worry about or stress out over.
People with Autism, typically have unique, and often demanding needs. Demanding just means that they are vital needs, that if not met, can have a very negative impact on their lives. In the case of my family, that impact ranges from sensory in nature to full on life-threatening.
Life doesn’t pull any punches. All four of my loved ones on the Autism Spectrum have unique, demanding and sometimes conflicting needs. That’s challenging because I’m but one person, trying to meet as many needs as I can, often failing to do so because I’m human. Sometimes one person needs something that is contraindicated for someone else. That seems to happen much more often than I’d like it to and certainly, more than seems fair.
Essentially, that means attempting to find a fragile balance between helping one while minimizing the negative impact on another. Let me tell you, it’s absolutely maddening to do so because sometimes, no matter what is done, someone will pay a price. There is never a one size fits all approach to anything in my world.
I do my best to take care of myself because I know that my health plays an essential role in continuing the quest to help my family navigate life, but it’s not easy.
I’m overwhelmed. I’m exhausted. I’m frustrated. I’m worried. I’m an Autism parent.
We all face unique challenges. We should be able to discuss them without feeling like we’re being judged. It’s important to remember that we are all human and the emotions we experience on our #Autism parenting journey are normal, healthy and NOT a negative reflection on your children.
Here’s a dumb question. Aren’t there any services that would give you all some extra help, as in babysitting, or home care, or even light housekeeping any time at all in a week? Seems like your family’s needs are urgent enough to use such a thing!
Not a dumb question because there probably should be services like this. Unfortunately, I don’t know of any and the ones I do are all paid services. Honestly, it’s more about catchup right now. If we could get caught up on a few things, we could maintain much better.
I don’t mean to sound trite but could one of you get a short term, part time job just to bring in some extra money to catch yourselves up. I imagine the money issues are making everything else so much harder. Would family help with the boys while you did this? Just a thought…a
That ends up creating additional problems than it solves. That being said, Facebook is fixed and I can begin picking up new advertising jobs and those typically pay right away. Our problem was a significant loss of income when my Facebook problems began because my network was crippled and it became an issue for advertisers.
I realised Facebook was the issue, I was just brainstorming how you could catch up that money. I’m glad it’s all fixed. Hopefully the person who caused it has something better to do with their time now and leaves you alone.
Oh and does it get any easier during the summer with the boys not having to get to school and home? Or is it even harder because they are home? Also, you said work, did you pick up some more work?
It’s easier in the sense that we don’t have to worry about all the problems associated with the school year but harder at the same te because we have all day every day, very few breaks and almost never a childless day.
As for your last question, work is about the same. YouTube has become a decent revenue stream but it requires time, computer power and a quiet environment. I have advertising partnerships that come and go but everything had been decimated by the issues with Facebook. Thankfully, Facebook finally fixed everything but it took a couple of months this time. While they fixed the ban, to my knowledge, they haven’t addressed issues with people abusing the reporting system. I’m afraid to open that network up again because I don’t want to go through this again. If I don’t, we won’t recover financially but as soon as I start using Facebook again, it’s open season on me.
I should also add that Facebook plays a big role in building and maintain partnerships. I’ve lost quite a few opportunities as a result of not being able to utilize my Facebook network. It’s very frustrating
Wait, Who is the 3rd person with depression?
You are a very brave person.