PFAPA – Page 3

Tag: PFAPA

All I can do is what I feel in the moment, is best

It’s been a pretty good day today. The boys seem to be doing better and I’m hoping that they can both return to school in the morning. Elliott’s fever is gone and he’s feeling fine now. I don’t know what was going on this morning. I don’t know how Emmett will be doing but he’s …

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Please don’t get any worse

The boys are both home from school today. Emmett’s par for the course with his fever flare and Elliott woke up the morning running a fever of 101.2°F and not feeling well. There’s shit going around the school and it looks like it may have come home with Elliott. It’s going to be a very, …

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#Autism Parenting: Picking the BEST of the WORST options

We have therapy for the boys tonight but Lizze isn’t feeling well and she will probably stay behind. It will likely be the boys and I heading out tonight. Tonight’s focus is going to be on school for Elliott and Emmett. We have to figure something out because while the boys like school, they’re also …

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I have enough to worry about already

Elliott is off to school while Emmett is home because of a fever flare. I’m really proud of Elliott because he did awesome this morning. Neither one of the boys likes going to school without the other but Elliott has been be very good about it this week. Emmett is in rough shape but is …

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Special Needs Parenting – What it feels like to watch your kids suffer

I’ve been working for almost a decade to help people better understand what Special Needs Parents go through. Whether it’s Autism, ADHD or even fragile health, there’s a story to be told and insight to be gained by reading it. Every family’s experience can and will be different. Even families dealing with the same diagnostic …

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Please keep Emmett in your thoughts and prayers

I mentioned that Emmett would be home from school today. The reason for that is rather bad fever flare. I’m pretty sure it started on Saturday because that when the physical symptoms began. At first, it was just one sore on the inside of his lip, but as of Sunday evening, he’s got several more. …

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We’re giving serious thought to homeschooling at least 1 of our 2 kids with #Autism, that are still in school

Full disclosure. I’m exhausted and having a hard time putting thoughts together tonight. I’m going to try and make this as coherent as possible but no promises. Lizze and I are seriously talking about the logistics of homeschooling the boys. Between Emmett’s inability to wear clothes and Elliott’s emotional struggles that are the result of …

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Trying to get exercise while doing chores around the house

I’m pretty proud of myself. Our dryer has been broken for a couple of weeks now. I tore it apart a week ago and discovered that it was simply the belt that was broken. I was able to order one on Amazon and it finally showed up today. Emmett, Gavin and I went into the …

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