Feb 15 2018
I’ve been playing a very frustrating game of phone tag with the pharmacy this afternoon. I need to make sure they either look out for a fax from the lab or call and have it faxed over because Gavin needs his refill tomorrow. I cannot stress enough that Clozapine is the most tightly controlled medication …
Feb 06 2018
I’m keeping this short and sweet cause we’re getting ready to head out the door again. Both the boys had good days at school. They came home in a good mood and are feeling good about going back tomorrow. ☺ If I could pick only one thing to go right today, this would have been …
Feb 05 2018
This fever flare is driving me nuts. I know it’s worse for Emmett but I’m still having a really hard time getting him to eat anything. He’s had a bit of yogurt, some pudding and I just got him to eat some brown rice. The brown rice was a pretty big surprise actually. The problem …
Feb 05 2018
I’m concerned that Emmett is going to be very difficult to get to school in the morning. His mouth sores are getting better but he still has a big one on the inside of his lip and it hurts me just to look at it. Poor Emmett is still in pain but we’re sending him …
Feb 03 2018
The boys had a pretty decent day. Gavin spent most of his time in his bedroom, most likely because he was on a mission to save the Universe from pending fake. Elliott and Emmett got along pretty well for most of the day. Emmett worked on some of his homework but towards the end of …
Feb 02 2018
I’m going to keep this super short because I’m exhausted. Emmett woke up and wasn’t doing well. We tried for over an hour to help him feel better and nothing worked. He became hysterical as we tried to help him decide what pants he could tolerate. He has a new sore on his upper lip …
Feb 01 2018
The morning was rough. I didn’t get nearly enough sleep because I was up with an Emmett who was in a great deal of pain. I let Lizze sleep and she let me sleep in, while she took Elliott to school. Teamwork… ☺ Emmett’s in a good mood but at the same time, he’s miserable …
Feb 01 2018
I totally thought Emmett there was a real chance that Emmett would be returning to school this morning. He seemed to be doing better-ish last night and I felt a surge of hope that this flare might be coming to an end. Unfortunately, Emmett woke up about 4 AM and was sobbing as he climbed …
