Read more about the article I’m really going to have to buckle down today
My thoughts

I’m really going to have to buckle down today

We've got a busy day tonight and our success depends on whether or not Emmett makes it to school. It's more important that we get out the door on time because we have to have Gavin's bloodwork done and get Lizze to a doctors appointment before 9 AM. I try to be positive but I have a bad feeling about how things are going to go with Emmett in the morning. After all of the morning chaos, I have to get Gavin to Social Security for his review. I'm hoping beyond hope that they don't want to have me discuss Gavin's status in front of him. I like to include Gavin in his own care when it's appropriate but talking about all the problems he's having isn't something I want…

0 Comments
February 6, 2018
Read more about the article We might be approaching the end of the road
Emmett John / My thoughts / PFAPA

We might be approaching the end of the road

This fever flare is driving me nuts. I know it's worse for Emmett but I'm still having a really hard time getting him to eat anything. He's had a bit of yogurt, some pudding and I just got him to eat some brown rice. The brown rice was a pretty big surprise actually. The problem is that he's not eating much and there's very little that we can pack in his school lunch and be sure he'll eat any of it. He's not being picky, he's just in a tremendous amount of pain. He's getting a new sore on his cheek and that's probably what's keeping him from eating now. He's been complaining about it today. Thankfully, that's one of the only new sore he's presented with for a couple…

0 Comments
February 5, 2018
Read more about the article Why I ALWAYS expect the unexpected
My thoughts

Why I ALWAYS expect the unexpected

The last time we spoke, I was talking about how we were going to get Emmett back to school today. I was worried about a few things that turned out not to be a problem at all. Last night, Elliott went to bed dealing with tummy issues. Emmett woke up a bit after midnight with tummy issues, while Gavin woke up about 3 AM sobbing because his head hurt and he felt like he was going to puke. Needless to say, this Dad didn't get much sleep last night and no one went to school today. I know there are tons of things floating around the school and thankfully this seems like a 12 hour bug because everyone is beginning to feel better. Lizze sent me to bed this morning…

0 Comments
February 5, 2018
Read more about the article He’s not a typical kid and this isn’t a typical situation
Emmett John / My thoughts

He’s not a typical kid and this isn’t a typical situation

I'm concerned that Emmett is going to be very difficult to get to school in the morning. His mouth sores are getting better but he still has a big one on the inside of his lip and it hurts me just to look at it. Poor Emmett is still in pain but we're sending him to school and as of bedtime, he's okay with that. He was worried about his pants but we told him he can wear his old pants. Shirts won't be too big of an issue and neither will his crocs. The big issue, or rather the two big issues will be his lunch and his makeup work. He's very worried about what he's going to eat for lunch because a lot of things still hurt his…

0 Comments
February 5, 2018
Read more about the article #Autism can be so goddamn frustrating at times
Emmett John / Inspirational Posts / My thoughts

#Autism can be so goddamn frustrating at times

I've spent the weekend working with Emmett on his make up work from school. While we were working through this pile of papers, I noticed a couple of things. I should begin by saying that we never made it through all the makeup work because of frustration and massive meltdowns. When Emmett works on things like math or sciences, he does quite well. When we works on anything that requires him to use something other than logic, he struggles. I learned something during this nightmarish battle over homework. Emmett excels in things that deal with facts and absolutes. Math, science and even spelling are all very ridged in the sense that there is a clear right and wrong. There's one right way to spell his spelling words and only one…

1 Comment
February 4, 2018
Read more about the article (Review) Adjustable Pillow by @eightsleep
My thoughts / Reviews

(Review) Adjustable Pillow by @eightsleep

This brief review is sponsored by Eight Sleep. They sent out their adjustable pillow for me to review and share my honest thoughts on. The opinions expressed are my own. https://youtu.be/DSLb_pISG8A Take $25 any Eight product, including smart mattresses, adjustable pillows, organic bed sheets and more! Use code SLEEPAFF25 Order Now The other day, FedEx dropped off a package from Eight Sleep. I've been anxiously awaiting for this box to arrive because it contains a new adjustable pillow from Eight Sleep. It's been a long week and I didn't get around to actually removing the pillow from its clear packaging until last night. I had originally planned on taking pictures of the pillow before trying it out for the night and finishing up this article. That plan changed because the…

0 Comments
February 4, 2018
Read more about the article I had to tell my son he’s NOT a failure
Clothes / Emmett John / My thoughts / Sensory

I had to tell my son he’s NOT a failure

I've been working with Emmett on wearing his new pants. It's not been an easy journey but I will cautiously say that we might be making a baby step forward. ☺ For those new to the party, Emmett is our 9 year old with Autism and significant Sensory Processing issues. Food and clothing are his mortal enemies. Food doesn't taste, smell, feel or look right and clothes make him itch. This has a profound impact on day to day life, especially when it comes to school. Apparently, the school requires clothes to be worn and there are many days where Emmett simply cannot wear clothes because the hurt. We recently had what I thought was our first successful shopping trip in regards to finding pants he will wear. He tried…

0 Comments
February 4, 2018
Read more about the article Prepaing the new school week
My thoughts

Prepaing the new school week

The boys had a pretty decent day. Gavin spent most of his time in his bedroom, most likely because he was on a mission to save the Universe from pending fake. Elliott and Emmett got along pretty well for most of the day. Emmett worked on some of his homework but towards the end of his time working on it, he became very stressed out and ended up having a decent size meltdown. Lizze is still under the weather but she's moving around a bit more. We have zero plans for tomorrow, aside from laundry and getting lunch supplies for the new school week. We're going to have to work with Emmett a bit because he will be returning to school Monday and he's going to be very nervous. I'm…

0 Comments
February 3, 2018