Things went horribly wrong this morning

I'm going to keep this super short because I'm exhausted. Emmett woke up and wasn't doing well. We tried for over an hour to help him feel better and nothing worked. He became hysterical as we tried to help him decide what pants he could tolerate. He has a new sore on his upper lip and that has him teetering on the edge to begin with. We know he tried and there wasn't anything that we could do. Our hope is that by Monday he'll be feeling better. For the moment, this has been an unbelievably exhausting morning.

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I’m praying there will be 2 kids in the car this morning

We're hoping beyond hope that Emmett will feel up to going to school tomorrow. He's been slowly doing better as the days go on but mornings are still really tough for him. Getting ready for school is often stressful for him and that will make him more sensitive to the pain. I'm not sure we will be able help him through the morning enough to get him to school. My goal is to not rush him to get ready. I want to try to keep him as calm and stress free as possible because it will get out of control quickly if I don't. Lizze and I will likely have to tag team him but with any luck, I'll be dropping two kids off at school in the AM... ☺

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How we’re going to address the problems at school

Lizze and I were discussing the school issues that have become an unwelcome visitors in our lives. It's pretty obvious to us that there are no good options because we'd likely be trading one problem for another. What we've decided to do at this point is preserve the current status quo. That being said, we will be working to address the concerns we have by pushing for the school to be open to parental involvement. Currently, there's no PTA and no forum for parents to voice their concerns or have their voices heard. This isn't how it used to be. Before the PTA disappeared, Lizze and I were heavily involved. In fact, Lizze was the PTA President. I think one of the biggest issues revolves around the fact that there…

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I wish I could do something to help him

The morning was rough. I didn't get nearly enough sleep because I was up with an Emmett who was in a great deal of pain. I let Lizze sleep and she let me sleep in, while she took Elliott to school. Teamwork... ☺ Emmett's in a good mood but at the same time, he's miserable because he wants to eat solid food. I looked at the sores on his lips this morning and it looks like there's another one popping up. I wish there was something that could be done but there isn't. This is one of those things that we don't know much about because it's incredibly rare and there's no research being done as a result. One of my readers brought up something called Magic Mouthwash. I think…

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#Autism + Haircut = MAJOR SUCKAGE

Elliott was feeling better this afternoon and I took advantage of that. He was desperately in need of a haircut and he was actually willing to get one. These opportunities don't come around very often because he hates getting his hair cut. Normally haircuts are a rather nightmarish event that leaves everyone stressed out and exhausted. It's a total sensory thing and a strong dislike of change. I wasn't sure how things were going to go but I'm pleased to say that Elliott did awesome. ☺ He never complained about having to get is hair cut short. His long hair was proving too much for him to maintain and we told him that we would have to cut it short if he couldn't maintain it. This is all typical teenage…

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All I can do is what I feel in the moment, is best

It's been a pretty good day today. The boys seem to be doing better and I'm hoping that they can both return to school in the morning. Elliott's fever is gone and he's feeling fine now. I don't know what was going on this morning. I don't know how Emmett will be doing but he's still only able to do shakes and is avoiding all solid food. If he's still not eating, I don't see how he can go to school. This whole thing is so frustrating because all I can do is what I feel in the moment, is best. There's no instruction manual and very little in the way of guidance available to help us know what to do. 😱 At least they seem to be doing okay…

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#Autism Parenting: Picking the BEST of the WORST options

We have therapy for the boys tonight but Lizze isn't feeling well and she will probably stay behind. It will likely be the boys and I heading out tonight. Tonight's focus is going to be on school for Elliott and Emmett. We have to figure something out because while the boys like school, they're also miserable at the same time, albeit for different reasons. This needs to be a very serious discussion about our options. I'm hoping Lizze feels up to going but but if not, we've discussed it amongst ourselves already and have reached a consensus. We both agree that the status quo isn't in the best interest of the kids. What we do about it is where we become less sure of ourselves. At this point, I feel…

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Review: Is the EcoQube C a great project for kids with #Autism? (@DesignADI)

This review is brought to you by EcoQube. They were kind enough to send me an EcoQube C to put together with my kids and help raise some Autism Awareness. I'm always on the lookout for projects I can work on with my kids. I really like to present my kids with things they can do that don't revolve around video games or tablets. When I came across EcoQube, I thought it would be a fantastic project to do with my kids. I reached out to EcoQube and explained what I was looking to do. They were super excited to be a part of raising Awareness for people with Autism and their families. I was sent the EcoQube C because that's a really good place to start and it's something…

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