Difficult decisions

The boys are spending the night at their Grandparents house. We opted to keep Gavin home with us because they were going to a large family gathering, and we're avoiding Gavin being places like that until after we see the hematologist. Lizze and I had been looking forward to going, but that was before we learned about Gavin's newest medical problems. We talked about having him hang out with my parents but they were unavailable. We both wish things were different, but this could quite literally be a life or death thing. If his numbers dropped again, and we didn't know, it's could be very serious. We are choosing to error on the side of caution. Making these types of decisions, are not something that everyone will understand. Frankly, nobody…

0 Comments

Super Major Update and Awesome News

I wanted to let everyone know a big thing happened while we were at Gavin's immunologist last week. I already mentioned how we discussed his labs and why his numbers keep dropping.  What I didn't tell you is that his immunologist cleared him for our trip to Florida. ☺  There's a great bit of detail that I'll save for another post, but the bottomline is, Gavin will be able to make the trip. That was something we were concerned about but also holding out hope that it would be okay.  Like I said, there's more to the story, but it's really late. I will say this.  There is a great deal of concern over Gavin's health, but his numbers, while still low, are out of the immediate crisis zone for…

0 Comments

Review: Contigo Autoseal Chill and Travel Mug (@GoContigo)

I wanted to take a minute and share a few quick thoughts on the Contigo Autoseal Chill water bottle and Travel Mug I received to try out. Over the years, I've accumulated quite a collection of water bottles and travel mugs. The ones that I find myself gravitating to are the ones by Contigo. I received a couple new samples the other day and I'm quite happy with them. The Contigo Autoseal Chill water bottle claims to keep things cold for 28 hours. I haven't had them for a full 28 hours but I put cold water in the water bottle about 12 hours ago and it's still ice cold. That's impressive, no matter how you look at it. Normally, water doesn't last for for more than an hour or…

1 Comment

Gavin’s IVIG infusion was a success 

Gavin had his IVIG infusion last night, because we were gone for most of the day. He did really well both during and after his infusion. Aside for physical exhaustion, there weren't any side effects that I was aware of.  Like I said, he was exhausted afterwards, and went to bed shortly after the process concluded.  Gavin looks a bit run down, but isn't complaining of anything, not that he really ever does. As far as I know, the only issue he is struggling with today is that his hip popped out once again. My understanding is that hurts like a bitch.  I'm not making any plans for today because I want him resting, especially because of how run down he appears to be. 

0 Comments

Major Update: All about Gavin 

We have a lot of catching up to do in regards to Gavin. Now that the server is up and running, I can finally do that. Gavin had his immunologist appointment yesterday. He did really well on the trip up and back. Sometimes he struggles in the car but he did great. We met with Gavin's immunologist and discussed everything that was going on with him at length. What we were able to confirm was that we have no idea what's causing the levels across all cell lines to go up and down. We can assume it's the Clozapine but there's no way to know for sure unless we remove it, and that's a huge deal. His levels have come up out of the more critical levels, but they're still…

0 Comments

General Update: Here’s what happened

You've probably noticed there's been some downtime here over the last day or so. I apologize for not making a general announcement prior but I migrated to a brand spanking new server. I was approached by a new host awhile back and over the last six months, we negotiated a deal I couldn't refuse.  The move was necessary and now that I'm are back up and running, things are so much better.  One downside is that the support forums are gone for now, and they won't be back up for a little while. I'll have to pay for a new service every month and I'm not sure what I'm going to do yet.  At this point, I'm dealing with monthly service fees again. My sponsorship is up and I figured…

0 Comments

Gavin’s Wish is being GRANTED :-)

It's been a crazy day so far, but a truly amazing one as well. I'm able to officially share that Gavin will be having his wish granted. The timing is up in the air at the moment but it will be as soon as Gavin is able to make the trip. We will be spending seven days in Florida at Give Kids The World Village. Weare getting tickets to all the parks there, including Disney, Universal, Kennedy Space Center, Lego Land, etc. All of this is made possible by Wishes Can Happen. The boys and I spent some time this morning at their 10th annual Wish-A-Thon. It's sponsored by 94.1 and WHBC, a local radio station. Gavin and I were interviewed on the radio. We shared Gavin's story and he did great.…

0 Comments

We are supporting Wishes Can Happen this morning

We have a very busy day. Lizze has an appointment first thing in the morning. The boys and I will be dropping her off and then heading to a fundraiser for Wishes Can Happen. Thursday and Friday they are having a Wish-A-Thon to raise funds to grant wishes for kids like Gavin. One of the local radios stations is sponsoring it and helping to raise money. If you're interested in supporting this amazing cause, click here to learn how. All money raised goes to funding wishes for kids with terminal or life threatening conditions. I promised I would do my best to stop by in the morning to show support. It's such a worthy cause and as long as nothing catastrophic happens, that's what we'll do. After that, we have to swing…

10 Comments