Gavin had a bad reaction to his #IVIG infusion

Gavin gets his IVIG infusion this morning, but I'm a tiny bit concerned. When he had his last infusion on Friday or Saturday, he got sick afterwards. He began not feeling well about an hour after it was done.  He soon became sick to his stomach and needed his anti-nausea medication, in order to make it through the night.  Thankfully, he's feeling better today but he had a rough go of it.  I don't know why he sometimes has bad side effects but not all the time. I'm grateful it doesn't always happen but I wish I could nail this down because if I knew why, I could try to fix it.  Unfortunately, it may just be a Gavin thing and there's no rhyme or reason to it. Hopefully, today's…

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This sets a terrible tone for the day

It was a rough night. Emmett woke up after a really bad nightmare and never went back to bed. He woke up shortly after midnight, just as Lizze and I were going to bed.  There was zero chance of getting him back to sleep and in order to prevent him from waking anyone else up, further complicating things.  As per the usual in situations like this, we moved to the living room in an effort to salvage whatever sleep I could.  My efforts were fruitless because he never went back to sleep. This of course, sets a terrible tone for the day, that I'll have to attempt to overcome. 

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Read more about the article Happy Sunday
A little sunshine......

Happy Sunday

A little sunshine...... I took this picture a few days ago. I manually edited it to remove the background color, or restore the color of the main flower. It depends in how you look at it. Anyway, this took a little while but I'm really pleased with the way it turned out.

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Do you agree with this statement? 

The boys are in their way home and I'm feeling slightly recharged. That's about as good as it gets when you're an Autism parent. If you ever get a break, it's never enough to fully recharge.  What you end up getting is just enough of a recharge to keep puttering along. Autism parents expend so much energy on an hourly basis, I'm not sure it's even possible to ever fully recharge.  Do you agree with that statement? Please explain. 

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Thank God his supplies showed up

I mentioned yesterday that Gavin's IVIG infusion supplies hadn't showed up. Thankfully, they arrived yesterday, right before the boys left for their Grandparents house.  I showed Gavin how to make sure that he received everything he was supposed to by going over the supply list, and checking things off.  Gavin did an awesome job accounting for everything.  Unfortunately, by the time the supplies did arrive, we had run out of time to do his infusion before he left. We'll be taking care of this as soon as he gets home from his grandparents house.. 

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Feeding our marriage

Lizze and I had a nice night. We went and saw the new Spider-Man Homecoming movie, and it was awesome.  I can't remember the last time we spontaneously went to a movie, let alone a super late showing like tonight. It felt good to be able to do that. It's important that Lizze and I get time to feel like a couple.  Things like this help to keep our relationship strong, and our sanity intact. Being Autism parents is really stressful, especially when it comes to maintaining a marriage. It's really important to focus on our relationship, because that helps us to be better parents. 

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Hello smidgen of normalcy

I'm feeling a little better and we've decided to go to a movie. We haven't been to a late night movie since Harry Potter... Lizze made me take her to each movie at midnight, on opening day. ☺  Anyway, this is rather spontaneous and really out of character for us. For that reason alone, I think this is a great idea..  Hello smidgen of normalcy..  ☺ 

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