The good news is pretty awesome and the bad news is Childhood Disintegrative Disorder
The has been one of the most emotionally exhausting and heartbreaking days ever.
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July 7, 2016
We made it to the @ClevelandClinic safe and sound
Gavin and I arrived at the Cleveland Clinic safely and here's what's happening now
July 6, 2016
I had to make plans for a worst case scenario with Gavin tonight
"..... It's easy to forget how fragile his health is because he's been so stable this past year and a half but complacency is not something I can afford to have in this type of situation....."
April 26, 2016
A couple of general medical updates
Here's part two of the general updates. This one focuses on medication related things.
March 7, 2016
We have another rather serious medication issue
"...... Gavin's body doesn't manage things properly. One of those things not properly managed is his circulatory system......" Read More
January 30, 2016
We finally made it to the Cleveland Clinic
It seems like the world is conspiring to make us late to Gavin's pediatric neurology appointment at the Cleveland Clinic. Here's what's happened..
September 29, 2015
Gavin’s blood pressure was really high for him today
Before every appointment at his psychiatrist's office, Gavin has his vitals taken. This allows for the detection of any significant medication related changes to be monitored. Because of Gavin's autonomic disorder, his blood pressure is always really low. The last time it was taken at this doctors office, it was 100/40 and that's about his average since the autonomic issues first started a few years back. When Gavin's blood pressure was take this morning, it was 137/66. That's actually not too bad for the average person but Gavin anything but average. The general consensus is that this may be caused by his medication that helps with the side effects of the Clozapine. Gavin's been taking liquid Pseudoephedrine three times a day to control the bladder issues caused by the…
August 3, 2015