Category: Autonomic Disorder



New concerns with Gavin’s health have us worried

We’re heading into a rough weekend. I need to catch you up on a few things I didn’t get around to yesterday.  The most concerning issue at the moment is that Gavin wasn’t feeling well while at his Grandma’s house, and ended up vomiting. The question is whether or not… Read more »



Gavin’s had a really rough day

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Gavin’s had a tough day and probably not for the reasons you’re thinking. Behaviorally, Gavin’s been an angel for the most part and we couldn’t ask for more.  Unfortunately, the things that have been a problem today are more health related. Gavin’s had stomach aches, on and off all day… Read more »




We made it to the @ClevelandClinic safe and sound

Gavin and I arrived at the Cleveland Clinic safely and here’s what’s happening now



I had to make plans for a worst case scenario with Gavin tonight

“….. It’s easy to forget how fragile his health is because he’s been so stable this past year and a half but complacency is not something I can afford to have in this type of situation…..”



A couple of general medical updates

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Here’s part two of the general updates. This one focuses on medication related things.