Category: Autonomic Disorder



Gavin’s had a really rough day

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Gavin’s had a tough day and probably not for the reasons you’re thinking. Behaviorally, Gavin’s been an angel for the most part and we couldn’t ask for more.  Unfortunately, the things that have been a problem today are more health related. Gavin’s had stomach aches, on and off all day… Read more »




We made it to the @ClevelandClinic safe and sound

Gavin and I arrived at the Cleveland Clinic safely and here’s what’s happening now



I had to make plans for a worst case scenario with Gavin tonight

“….. It’s easy to forget how fragile his health is because he’s been so stable this past year and a half but complacency is not something I can afford to have in this type of situation…..”



A couple of general medical updates

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Here’s part two of the general updates. This one focuses on medication related things.



We have another rather serious medication issue

“…… Gavin’s body doesn’t manage things properly. One of those things not properly managed is his circulatory system……” Read More



We finally made it to the Cleveland Clinic

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It seems like the world is conspiring to make us late to Gavin’s pediatric neurology appointment at the Cleveland Clinic. Here’s what’s happened..