The has been one of the most emotionally exhausting and heartbreaking days ever.
Category: Autonomic Disorder
Jul 06 2016
We made it to the @ClevelandClinic safe and sound
Gavin and I arrived at the Cleveland Clinic safely and here’s what’s happening now
Apr 26 2016
I had to make plans for a worst case scenario with Gavin tonight
“….. It’s easy to forget how fragile his health is because he’s been so stable this past year and a half but complacency is not something I can afford to have in this type of situation…..”
Mar 07 2016
A couple of general medical updates
Jan 30 2016
We have another rather serious medication issue
Sep 29 2015
We finally made it to the Cleveland Clinic
It seems like the world is conspiring to make us late to Gavin’s pediatric neurology appointment at the Cleveland Clinic. Here’s what’s happened..
Aug 03 2015
Gavin’s blood pressure was really high for him today
Before every appointment at his psychiatrist’s office, Gavin has his vitals taken. This allows for the detection of any significant medication related changes to be monitored. Because of Gavin’s autonomic disorder, his blood pressure is always really low. The last time it was taken at this doctors office, it was 100/40 and that’s about his …
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Rob Gorski
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