Autonomic Disorder Archives - Page 2 of 2 -

Category: Autonomic Disorder

The good news is pretty awesome and the bad news is Childhood Disintegrative Disorder

The has been one of the most emotionally exhausting and heartbreaking days ever.

We made it to the @ClevelandClinic safe and sound

Gavin and I arrived at the Cleveland Clinic safely and here’s what’s happening now

I had to make plans for a worst case scenario with Gavin tonight

“….. It’s easy to forget how fragile his health is because he’s been so stable this past year and a half but complacency is not something I can afford to have in this type of situation…..”

A couple of general medical updates

Here’s part two of the general updates. This one focuses on medication related things.

We have another rather serious medication issue

“…… Gavin’s body doesn’t manage things properly. One of those things not properly managed is his circulatory system……” Read More

We finally made it to the Cleveland Clinic

It seems like the world is conspiring to make us late to Gavin’s pediatric neurology appointment at the Cleveland Clinic. Here’s what’s happened..

Gavin’s blood pressure was really high for him today

Before every appointment at his psychiatrist’s office, Gavin has his vitals taken. This allows for the detection of any significant medication related changes to be monitored.  Because of Gavin’s autonomic disorder, his blood pressure is always really low.  The last time it was taken at this doctors office, it was 100/40 and that’s about his …

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