Gavin’s had a tough day and probably not for the reasons you’re thinking. Behaviorally, Gavin’s been an angel for the most part and we couldn’t ask for more. Unfortunately, the things that have been a problem today are more health related. Gavin’s had stomach aches, on and off all day… Read more »
The has been one of the most emotionally exhausting and heartbreaking days ever.
Gavin and I arrived at the Cleveland Clinic safely and here’s what’s happening now
“….. It’s easy to forget how fragile his health is because he’s been so stable this past year and a half but complacency is not something I can afford to have in this type of situation…..”
Here’s part two of the general updates. This one focuses on medication related things.
“…… Gavin’s body doesn’t manage things properly. One of those things not properly managed is his circulatory system……” Read More
It seems like the world is conspiring to make us late to Gavin’s pediatric neurology appointment at the Cleveland Clinic. Here’s what’s happened..