Read more about the article We’re waiting to see the doctor and Gavin’s getting hangry
Cardiology / Cleveland Clinic / Gavin / My thoughts

We’re waiting to see the doctor and Gavin’s getting hangry

Gavin's EKG went well and literally lasted only a couple of minutes. We made it to his second appointment of the afternoon and just spent a good bit of time, meeting with the nurse, going over a detailed family history. She was great and I really appreciate that. ☺ Now we're waiting for the doctor and I must say that it feels like it's about 1,000 °F in this room. I hate being up here by myself but it is what it is. Hopefully it won't be too long of a wait because Gavin is getting hangry..

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November 7, 2018
Read more about the article We’ve just arrived at the @clevelandclinic for Gavin’s #EKG
Cardiology / Cleveland Clinic / Gavin / My thoughts

We’ve just arrived at the @clevelandclinic for Gavin’s #EKG

Gavin and I arrived at the Cleveland Clinic, right in time. Our first stop is his EKG and then we see his new cardiologist immediately afterwards. Lizze wasn't feel well this morning and therefore stayed home. At the moment, we're crammed into a tiny waiting room. I don't care about the size of the room but some one in here is a very heavy smoker and they smell like an ashtray. I don't do well with this particular smell. It's making me sick. 🤮 It's a good thing Lizze isn't here because this smell would kill her. Anyway, now we just wait to be called back.

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November 7, 2018
Read more about the article Gavin begins Cardiology journey at the @clevelandclinic this week
Cardiology / Cleveland Clinic / Ehulers-Danlos / Gavin / My thoughts

Gavin begins Cardiology journey at the @clevelandclinic this week

The Cleveland Clinic called on Friday, before Lizze and I left for the funeral. They were calling to make Gavin's Cardiology appointment. The last time Gavin was at his Neurologist, we discussed Gavin having Ehlers-Danlos. His doctor wants him to be seen in Cardiology at the Cleveland Clinic because of the risk that he may have the vascular form of Ed. Ehulers-Danlos can complicate many aspects of his health. We decided to pull everything up to Cleveland from Akron because Gavin is aging out and will eventually have to move anyway. On Wednesday, Gavin will have an EKG or Electrocardiogram, to sorta measure how his heart is doing. We'll immediately see the doctor afterwards. I'm not expecting anything new to be discovered here because he's seen Cardiology several times at…

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November 4, 2018
Read more about the article How the @clevelandclinic gave us hope
Cleveland Clinic / Lizze / Migraines / My thoughts / Neurological Center for Pain

How the @clevelandclinic gave us hope

It's been a couple of days and I've still not gotten around to updating you on Lizze's appointment at the Cleveland Clinic. As a quick reminder, she was at the Neurological Center for Pain, seeking help for her migraines. Lizze went into this appointment with very, very low expectations because for the most part, she's without hope that she will ever live a day without pain. I get where she's coming from and it breaks my heart to see her go through this. That said, I'm carrying the touch in regards to hope because I cannot accept a reality in which she can't find relief from her migraine. She deserves to exist without pain and I will keep working towards that end. We arrived a bit early but only had…

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October 21, 2018
Read more about the article At the @clevelandclinic Neurological Center for Pain hoping for a miracle
Cleveland Clinic / Lizze / Migraines / My thoughts / Neurological Center for Pain

At the @clevelandclinic Neurological Center for Pain hoping for a miracle

Lizze and I have safely arrived at the Cleveland Clinic's, Neurological Center for Pain. She really scared that they won't be able to help her. She hasn't been in - nor does she want to go on pain medication. She want the pain to stop, not just be masked. We are hoping that she can try a medication called Aimovig. It came out earlier this year and is the very first medication designed specifically for migraines. It's not a medication for something else that used offlable to treat migraines. It's supposed to be a big deal and we're hoping she can try it. She's had the same migraine for close to 7 years now. It never goes away and it only slightly lessens or gets worse. She's desperate for relief…

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October 18, 2018
Read more about the article My wife is visiting the @clevelandclinic today, desperate for relief from her constant migraines
Cleveland Clinic / Lizze / Migraines / My thoughts / Neurology

My wife is visiting the @clevelandclinic today, desperate for relief from her constant migraines

It's a huge day for Lizze. She's finally getting in to see her new headache specialist at the Cleveland Clinic. Lizze has had the same migraine for roughly the last 6 plus years and it never stops or goes away. She's never responded to medication and they've tried everything, including Botox injections in her forehead, face and back of the neck. It's been years since there's been any new options for the her to try but there are currently new treatments that hold promise for relief. Part of the issue that makes Lizze's case so complicated is that she has Ehlers-Danlos and mild autonomic disfunction. Ehlers-Danlos is a connective tissue disorder and can also effect the cardiovascular system as well. It's believed that her migraines may be related to a…

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October 18, 2018
Read more about the article Here’s how our appointment with Pain Management went
Cleveland Clinic / Lizze / My thoughts / Pain Management

Here’s how our appointment with Pain Management went

Lizze and I met with Pain Management at the Cleveland Clinic yesterday. The objective of this appointment was to find ways to help Lizze manage her dibilating chronic pain. Lizze is living with Fibromyalgia, Ehlers-Danlos and daily migraines. As anyone dealing with chronic pain will likely tell you, it's exhausting, and it has a profoundly negative impact on your life. Lizze's pain impacts every single aspect of her life and has since 2004, when she was first diagnosed with Fibromyalgia. Our reason for seeing pain management was to help her better manage her pain and maybe, get some of her life back in the process. There was a great deal of discussion that occurred during the appointment and her new doctor is really cool. I liked him but most importantly,…

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September 21, 2018
Read more about the article The appointments went well and we just arrived home
Cleveland Clinic / Lizze / My thoughts / Pain Management

The appointments went well and we just arrived home

Lizze and I just got home. We've been gone for about 10 hours in total. It's been a really, really, really long day. The boys are currently on the their way home and once their settled in, I'm going to likely go walking. Lizze's appointments went very well and we're still sorta digesting what we learned in pain management. I'll work on a summary of both the pain management appointment and what happened at school in regards to Emmett. I'm pretty sure we've resolved that issue but time will tell. Right now, I'm just tired. I don't really want to go walking but that's all the more reason for me to go. I'm on course to finish my monthly goal almost 10 days early. That's awesome. ☺ Anyway, my plan…

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September 19, 2018