Category Archives: GAMMAGARD




Gavin’s #IVIG infusion was a very frustrating experience today

So Gavin’s medication arrived. We went through the newly received supplies and figured out how to draw up the new solution. Previously, we were using 3, 10cc vials for a total of 30cc’s of solution. With the new medication, there are 2 vials total. The first vial contains 10cc’s and… Read more »







It’s a HUGE day for us and here’s why

After weeks of stress, worry, fear, frustration, anger and exhaustion, we should finally see Gavin’s IVIG infusion medication arrive today. We don’t have a specific time but it’s supposed to be before lunch. I can’t totally exhale until they actually arrive because this has been a serialistic nightmare this far…. Read more »







The best news we’ve had in a month

I received a call from Akron Children’s Home Health, the pharmacy we get Gavin’s IVIG infusion medication and supplies from. Everything is set and Gavin should have his new medication on Thursday morning. There was a slight delay because apparently, there were special contracts that needed to be signed in… Read more »







We finally figured out why Gavin has NOT been able to get his life saving medication and you won’t believe the reason

I’ve just spent the last three hours on the phone, bouncing between Gavin’s doctor, the specialty pharmacy and insurance. I swear to God, if I had hair, it would be all over the floor right now. After three fricking frustrating and grueling weeks, we’ve finally gotten to the bottom of… Read more »







My wife and I have made a very difficult decision

I haven’t heard anything about Gavin’s IVIG infusion meds yet and he will be missing his sixth infusion in a row on Monday. As a result, Lizze and I are having to make some difficult decisions. It’s completely reasonable to assume that with every missed infusion, the risks to Gavin’s… Read more »







The doctor called and I learned something very interesting

Gavin’s awesome immunogist just called and wanted to know what was going on. I explained what I was told by the pharmacy and she was frustrated by it as well. Neither of us are sure what’s going on and why there’s such a delay. She’s going to get to the… Read more »







Even if we’re overreacting, I can live with that

Until we’re given other instructions, we will not be taking Gavin anywhere there are crowds of people. I’ve left messages once again today in regards to Gavin’s IVIG infusion medication and I’m waiting to hear back. At this point in time, and in the absence of definitive information one way… Read more »