I'm looking at this as a blessing but it's also kinda interesting at the same time. With all the challenges Gavin faces on a daily basis, including memory loss, cognitive decline and a bunch more, he's still doing well in some areas. This morning Gavin had his IVIG infusion and was able to put it all together, without any noticeable problems. It's not really that complex but the fact that he was still able to put all the pieces together, and draw up his medication, is a good thing. I find this interesting because there are very simple things that Gavin is unable to do anymore. Putting his IVIG infusion together is more challenging and he can still do it. Good job Gavin.... ☺

Gavin has suddenly become more interested in assisting with his own IVIG infusions. He's been putting the equipment together for the longest time but never wanted to draw up the meds and put the pump together.  The last two infusions, he's asked to draw up the medication and prime the pump.  It's not difficult but it does take fine motor proficiency that Gavin simply doesn't have. He struggled with it but finished the job, all by himself. That's awesome, because it's really important for him to learn to do these things on his own.  I'm really proud of him because he didn't get frustrated and just kept working at it until it was done.  I meant to take a picture but forgot. I'll try to remember on Monday.  The last…

Gavin had his IVIG infusion last night, because we were gone for most of the day. He did really well both during and after his infusion. Aside for physical exhaustion, there weren't any side effects that I was aware of.  Like I said, he was exhausted afterwards, and went to bed shortly after the process concluded.  Gavin looks a bit run down, but isn't complaining of anything, not that he really ever does. As far as I know, the only issue he is struggling with today is that his hip popped out once again. My understanding is that hurts like a bitch.  I'm not making any plans for today because I want him resting, especially because of how run down he appears to be. 

Gavin's labs have been drawn and I'm waiting to get the results. I'm cautiously optimistic about today's numbers because yesterday they were coming back up.  In the meantime, I need to get Gavin's IVIG infusion started.  We are supposed to get a new delivery of his supplies today but they haven't arrived yet. There's enough to do today's infusion but we have nothing left for Monday.  I'm so proud of Gavin because he's taking this like a champ. He's already had his blood drawn four times this week alone and that will at least continue into the middle of next week. It depends on the results of said bloodwork.  He's not complaining, although he'd prefer not to have to go through this.  As hard as this is for Lizze and…