Category: IVIG Infusion

We finally figured out why Gavin has NOT been able to get his life saving medication and you won’t believe the reason

I’ve just spent the last three hours on the phone, bouncing between Gavin’s doctor, the specialty pharmacy and insurance. I swear to God, if I had hair, it would be all over the floor right now. After three fricking frustrating and grueling weeks, we’ve finally gotten to the bottom of why Gavin’s infusion medications are …

Continue reading

The doctor called and I learned something very interesting

Gavin’s awesome immunogist just called and wanted to know what was going on. I explained what I was told by the pharmacy and she was frustrated by it as well. Neither of us are sure what’s going on and why there’s such a delay. She’s going to get to the bottom of this, one way …

Continue reading

Even if we’re overreacting, I can live with that

Until we’re given other instructions, we will not be taking Gavin anywhere there are crowds of people. I’ve left messages once again today in regards to Gavin’s IVIG infusion medication and I’m waiting to hear back. At this point in time, and in the absence of definitive information one way or the other, we’re going …

Continue reading

There’s only 1 thing that could make things worse and it just happened

I have been sharing how stressed out and worried I am over Gavin’s current immunological crisis. I consider it a crisis because there is a nationwide shortage of GAMMAGARD. This medication literally replaces his broken immune system and keeps him from getting sick or worse. Until we resolve the issue and solidify a working plan …

Continue reading

1 phone call has sent me into a complete panic

I wrote about frustrations and explanations for why guardianship hasn’t been completed for Gavin. I was explaining how things keep coming up that force us to reprioritize everything. See: I’m going to need an attorney. Not twenty-four hours go by and we’re slammed once again, with yet another potentially life threatening issue. I received two …

Continue reading

Gavin’s IVIG infusion is NOT going well today

Gavin’s been undergoing his IVIG infusion for over five hours now and it’s still not done. This is not a good thing because he’s getting extremely anxious and understandably so. This usually comes down to needle placement and because there’s only so many locations in his belly to place both needles and because there have …

Continue reading

%d bloggers like this: