Read more about the article It sucks but we’re doing okay-ish
My thoughts

It sucks but we’re doing okay-ish

Last night, we sat down with the boys and their therapist to tell them what was going on. They already knew that mommy had moved out but they hadn't heard from her what was going on or been able to ask questions. Doing this in the presence of their therapist made sure that they had all the support they needed. All things considered, it went well. The kids are kind of a mixed bag at the moment. It's still very new to them and it's really important that we get visits started ASAP. They're going to spend the night tomorrow and as far as I know, they're all excited about it. That's a good thing. 😊 We had a decent day today and I'm grateful for that. I kept pretty…

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August 15, 2019
Read more about the article “Blanket wrapping” is the new weighted blanket…
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“Blanket wrapping” is the new weighted blanket…

What is SafeBlanket?We use "safe blanket" in our hospital to help comfort children and adults with several "blanket wrapping" techniques. The SafeBlanket is a durable, functional heavy blanket used to wrap your loved one. The comforting and soothing effects of the pressure help calm patients quickly. We also use it to hold unusually combative patients during routine medication administration (e.g., injections, blood draws). I need your help to gain feedback. As a passionate member of the autism community, I could use your engagement. Please visit our website and drop your email to remain informed of our progress and leave direct feedback. www.safeblanket.comPeople are talking:"That sounds amazing. I have a medical condition that, combined with ASD, had me shaking and shaking. The only thing that would get it to stop was…

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August 12, 2019
Read more about the article Working to become the leader my family needs me to be
My thoughts

Working to become the leader my family needs me to be

I know I'm so far behind and I'm not keeping up with this blog. It's never my intention to back away because it's an important part of helping me manage the stress in my life. Since the beginning, writing about our life, specifically from my perspective, has been therapeutic for me. I was able to write what I was feeling and then walk away, without having to carry the weight anymore. It's been largely successful and I'm so grateful that it also helps provide comfort to other families going through similar situations. There's a great deal going on in my life right now and writing is becoming more difficult for me on a number of levels. I'm trying to force myself to get back into the habit of writing a…

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August 9, 2019
Read more about the article Gavin did something pretty amazing tonight
Gavin / My thoughts / Today's Victory

Gavin did something pretty amazing tonight

I wanted to touch base and let you know that things are going pretty good at the moment. Gavin's appointment with immunology went well and he's had a pretty good day. In fact, Gavin's had an awesome day. The kids had therapy tonight and while we were there, we were trying to work through a disagreement with Elliott. It got a bit heated and Elliott expressed himself in a way that wasn't very respectful. We know he was frustrated but we still need to be respectful. It's a little bit harder for him but we just need to keep working on it. Elliott's rough time went on for about half an hour before Gavin, who was on the other side of the room with Emmett, just sorta snapped. He stood…

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August 8, 2019
Read more about the article #Autism parenting is all about progress not perfection
Common Variable Immunodeficiency / Gavin / Immunology / IVIG Infusion / My thoughts

#Autism parenting is all about progress not perfection

It's not a huge surprise that Gavin's appointment with his immunologist went well. These appointments rarely go poorly because he's monitored so closely on a weekly basis. Gavin sees his immunologist because he has Common Variable Immunodeficiency or CVID, which put simply, means he lives with a severely compromised immune system. This is a life threatening condition that has no cure. In order to stay healthy, he requires IVIG infusions twice a week and we do those at home. Today's appointment is a follow up. We have to physically check in about every six months and have special labs run. That assumes there aren't any problems between appointment. Anyway, everything went pretty well and Gavin was even able to answer most of the questions on his own. I only spoke…

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August 7, 2019
Read more about the article We’ve made it to immunology
Common Variable Immunodeficiency / Gavin / Immunology / My thoughts

We’ve made it to immunology

Gavin and I made it to his appointment. We actually arrived thirty minutes early because there was absolutely zero traffic issues. That almost never happens. Usually, we leave early enough to allow ninety minutes for travel time. Today it only took about an hour because there was simply no stop and go traffic. Who'd of thunk it? Anyway, Lizze is home with the boys and hopefully Gavin and I will be on our way home before too long. I have a couple of stops along the way but we should be back in the early afternoon.

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August 7, 2019
Read more about the article Today was far from perfect but perfect was never the target
My thoughts

Today was far from perfect but perfect was never the target

I feel like we had a good day today. It goes without saying that it was far from perfect but perfect is never the target. We had some issues, especially at bedtime with Elliott but I'm still breathing and so is he. 😉 We're getting into that teenage angst and I'm gonna be honest, it's not fun. Autism complicates things in the sense that it sorta muddies the water. It's hard to know what's typical teenage behavior and what's Autism related. I don't know, maybe that doesn't make sense. Either way, we all survived the day and I'm always grateful for that. It could always be worse and I try to remind myself of that every single day. Everyone is sleeping and I'm gonna finish this up and hit the…

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August 6, 2019