Read more about the article I just want the screaming to stop :(
Anxiety / Emmett John / My Crazy Life

I just want the screaming to stop :(

Nothing is going as planned this morning.. Elliott and Gavin are doing pretty well and they are ready to make the trip to the immunologist in Cleveland. Emmett on the other hand, is another story completely.. Anxiety is definitely getting the better of Emmett today. He's refusing to go to school because he doesn't feel well. He says that he feels like he's going to throw up. Maybe he doesn't feel well. Maybe he's actually getting sick. Then again, maybe he's not.    What I suspect is that his stomach ache is the result of him being anxious about going to school by himself, without his big brother Elliott.  I think he's experiencing anxiety, which we all know can upset ones tummy. Emmett has been hysterical this morning and frankly,…

9 Comments
September 16, 2015
Read more about the article I could use some thoughts and prayers please 
Thoughts and Prayers

I could use some thoughts and prayers please 

It's going to be a really challenging day. I've got about 3 hours of driving to do, in order to get both Elliott and Gavin to the immunologist in the morning.   Between Elliott's anxiety and Gavin's having to stop every few minutes to use the bathroom, my patience will be tested.     I'm actually going to bed really early because both Elliott and Gavin are going to be struggling and I need to help them through the appointment.  Good night everyone.  

2 Comments
September 15, 2015
Read more about the article We just survived a massive, massive meltdown
Elliott / Meltdowns

We just survived a massive, massive meltdown

From the moment I picked Elliott up from school, his anxiety level was building and building.  He may tell me what he thinks is wrong but I just don't think that it's very accurate. Based on his enormously raging meltdown, I feel like what he's telling me is missing key pieces of information, needed to figure out how to help him.  There is no consoling him. There is no reasoning with him because that trains already left the station.  I now have a headache and my stress level has been taken through the roof. 😱   

2 Comments
September 15, 2015
Read more about the article Off to physical therapy at @AkronChildrens
Akron Children's Hospital / Emmett John / My thoughts / Physical Therapy

Off to physical therapy at @AkronChildrens

Emmett, Elliott and I are going to be on our way to physical therapy at Akron Children's Hospital. Emmett gets 45 minutes of therapy a week and it really is a positive thing.  It sucks that I have to pull him out of school early but the benefits far outweigh the price of admission.  I anticipate a really positive session with his amazing PT. 😀   

0 Comments
September 15, 2015
Read more about the article Both IEP meetings are done
Elliott / Emmett John / IEP Meeting

Both IEP meetings are done

Just finished up my IEP meeting for the day and I can safely say that my brain is fried. I'll explain what happened later on in the day but for now, everything went well.  There are a few things that need to be noted but I'll explain later.  I'm going walking to clear my cluttered head.    

0 Comments
September 15, 2015
Read more about the article Do you have any idea how today has gone?
My thoughts

Do you have any idea how today has gone?

Its been one of those days that has dragged on forever. I've pretty much been nonstop since 7:00am this morning.  On the plus side, I got a great many things accomplished.     Gavin's IVIG infusion is just about done (at the time of writing 8:30pm), so he will be off to bed shortly. That marks the end of my parenting stuff for the night. Sure, there's still a million things I need to do still but I'm exhausted and need to be ready for two IEP meetings in the morning.  😱 Anyway, Emmett's eyes checked out good and his new glasses will be ready in about a week. He will now have two backup pairs and I feel really good about that because I really like redundancy.  Elliott had a…

0 Comments
September 14, 2015