Read more about the article A gentle reminder about Autism Awareness
Link / My thoughts

A gentle reminder about Autism Awareness

Okay, folks, it's Autism Awareness Month, and there are a million ways to celebrate. Everyone is different, and raising awareness can take many forms. I've been very vocal about my feelings about this over the years. I feel it's so important that we focus on the people and less on the large organizations during the only time of year when people are paying closer attention. The truth is, you can raise awareness is countless ways. I'm a huge fan of sharing personal experience because it's a great way to help people form a more emotional connection and that helps them better relate. Some people screw in blue light bulbs, and that's okay too. Some people like to more subtly raise awareness year-round with things like Autism Awareness ribbons, magnets and…

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April 19, 2019
Read more about the article My kids witnessed yet another hostage crisis yesterday
My thoughts

My kids witnessed yet another hostage crisis yesterday

My wife and I have known for a long time, that we need to move out of our neighborhood. There are people in our neighborhood that we absolutely love and would miss, but it's just not safe. A quick recap of just some of the significant events that have happened in front of us in recent years. I was almost rundown, in front of my family by a car fleeing the scene of a drive-by shooting. I was getting out of our car when we heard the shots. Next thing I know, a car is speeding towards me, swirving to put me in its path. I saw the windows roll down and I thought I was going to die. I managed to get out of the way and away from…

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April 19, 2019
Read more about the article Time off for good behavior
Autism Parenting Insight / My thoughts

Time off for good behavior

If the boys are feeling better tomorrow, Lizze and I will get a desperately needed break. It's been nonstop since last Friday, neither one of us have been sleeping well, and we need to unplug ASAP. Assuming we get time off for good behavior, we probably won't do anything particularly exciting. Funds are tight, and Lizze hasn't been feeling well, so the likelihood that we'll actually get out of the house is not high. Maybe I'll grab some takeout or something simple like that. Lizze and I have never really been able to do many of the things that couples do for fun. Either we don't have the money, time or even the energy. It kind of sucks and I'm really trying to improve our situation, so we are afforded…

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April 19, 2019
Read more about the article Today we follow-up with Gavin’s doctor
Gavin / My thoughts

Today we follow-up with Gavin’s doctor

Elliott and Emmett are both home from school due to illness. Thankfully, there's no school tomorrow so they will have the weekend to recover. In just a little while, I'll take Gavin to his doctor's appointment at Akron Children's. This is a follow-up from hospitalization this past weekend. I'm not expecting anything crazy to come from this and I'm looking forward to starting the long weekend...

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April 18, 2019
Read more about the article After tonight’s events, we have 3 major concerns
Gavin / My thoughts

After tonight’s events, we have 3 major concerns

With everyone being sick and by everyone I mean Elliott and Emmett, it was just Gavin at therapy tonight. I'm at a loss as to how to describe what took place while we were there. That sounds ominous, and it's not really anything like that. Gavin had been anxiously awaiting the appointment because he wanted to update both Dr. Pattie and myself on the day's adventures. What ended up happening was Gavin spent an hour, rambling on about the recent code z stuff I was talking about this morning, along with a ton of other things. The themes of these missions were all good vs. evil. I'm a little concerned about the violent nature of some of his actions on these missions. I'm actually quite a bit concerned by some…

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April 17, 2019
Read more about the article This week is rapidly going downhill
My thoughts

This week is rapidly going downhill

So Emmett and Elliott are both home sick today. Emmett was up most of the night complaining of his back hurting, a headache, and his face hurting as well. I thought that was kinda weird. He's getting worse as the day wears on and he's also running a fever now. Mr. Elliott is moving around a bit more, but he's got an awful cough and is still running a fever as well. He's spent most of the day laying in bed, which tells me he's definitely not feeling well. We're keeping an eye on both of them and trying to keep them both hydrated, which is proving to be a challenge, especially for Emmett. I spoke with the school today, and there's a bunch of crap going around, we are…

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April 17, 2019
Read more about the article Code Z
Autism Parenting Struggles / Clozapine / Gavin / My thoughts / Schizophrenia

Code Z

Another day, another psychotic episode. Last night, Gavin came running into the living room and was visibly upset. He began nervously pacing back and forth before blurting out code z. I wasn't paying close attention to what he was saying because he's psychotic and saying all kinds of crazy things. I don't mean that disrespectfully but instead it's literally what's happening in my house right now. After he began shouting code z - code z, I was concerned about his little brothers hearing him, so I calmed Gavin down and asked him to explain to me quietly what was going on. Even paying meticulous attention to his words left me struggling to follow what the hell he was talking about but here's what I gathered. Code Z stands for Code…

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April 17, 2019
Read more about the article Every day it seems there’s more to worry about
Autism Parenting Struggles / Gavin / My thoughts

Every day it seems there’s more to worry about

It's been a chaotic day for me. Elliott was home sick, Lizze isn't feeling good, and Emmett is struggling in his own way. Don't even get me started on Gavin. Today brought to light a new concern in regards to Gavin. When we were at his neurologist a week or so ago, he weighed 137 lbs. That was progress in our efforts to help him gain weight. I noticed yesterday, when I was trying to help him with his infusion, he has almost no body fat. It's so difficult to do these infusions because the subcutaneous needles end up hitting muscle. Not only is that painful but I think it's also contributing to the issues with the infusion sites always leaking. This morning I had Gavin step on the scale,…

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April 17, 2019