3 pictures of moments that made me smile

We all have our good days and our bad days. Yesterday was a blend of both good and bad but there were also some bright spots as well. I wanted to highlight a couple of these bright spots because they made me smile. First up is courtesy of Mr. Gavin. His new IVIG infusion pump finally showed up and he was able to use it for the first time tonight. He was excited and it was a pretty good infusion.. ☺ Gavin killed me with his super serious face but whatever... He's happy and that makes me happy. ☺ The final bright spot took place much later and was signed, sealed and delivered by Mr. Emmett. I mentioned in the previous post that Emmett wasn't feeling well last night. He…

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It’s so easy to forget he struggles to express himself

There's something that is often overlooked when it comes to Emmett. He's incredibly intelligent and I mean scary smart. Academically he's way ahead of where he should be and just keeps going. This is something we feel blessed to be able to witness but there is a downside. Emmett is so smart and so articulate that it's incredibly easy to forget that he has a very, very difficult time with expressive language. Majority of the time, he's unable to tell us anything about how he's feeling or what's upsetting him. Tonight is a perfect example of this. Lizze and I are catching up on some shows we recorded and out of nowhere, Emmett appears. We can see he's in distress but the only thing he can say is I don't…

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It feels good to hurt like this again

I'm working in getting my fitness goals back on track. The holidays were rough and so were the first couple of weeks of withdrawaling from Paxil. As I'm feeling better, I'm trying to make a consistent effort to get things back on track. There are a few key areas I need to focus on: Improved sleep (both duration and quality) Increasing my activity level Further fine tuning a more healthy diet Strength training As far as sleep is concerned, there's only so much I can do at this point in time. Most Autism parents struggle with sleep as well and there isn't always anything that can be done. Having said that, I want to make the best out of the hours I do get and make them as beneficial as…

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We’re storm prepping right now

Our first day of our four day weekend is off to a decent start. After this morning's meltdowns, things got better. The boys have been playing together without much problem and I love seeing that. Any plans for going anywhere or doing anything are shutdown because of the weather. We are currently in an ice storm and everything is covered. This will be followed up with a massive snow storm that is supposed to drop up to twelve inches on us today and tonight. I'm having the kids charge all their batteries so they can charge their tablets if the power goes out. We have food and water to last at least a few days, not that things will get that bad. I also realized that I'm going to have…

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The only thing that could make it worse

It was rougher night last night because Emmett woke up about 2 AM and was unable to go back to sleep. If at all possible, I don't like to go to sleep while one or more of the kids are awake, especially in the middle of the night. I've been known to grab a nap on the couch while the kids are watching a movie or something but I'm right there in case anything happens. I assume that Emmett had a nightmare again but he doesn't like to talk about it and if I ask, he gets upset. Generally speaking, nightmares will wake him up and make it difficult for him to go back to sleep. He and I ended up sleeping in the living room last night. It took…

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The good kind of exhausted

We're beginning another four day weekend tonight. We're also bracing for a some bad winter weather as well. I think we're just going to keep things mellow tonight. Maybe order a pizza and watch some Netflix with the kids. I've had a pretty decent day. I didn't sleep well last night but after a morning nap, I was able to get some work done, get the boys home from school and even squeeze in a TRX workout as well. I've got to admit, I'm fricking exhausted but it's the good kind of exhausted. ☺

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Finally, some good news

About mid-morning, I received a phone call from the pharmacy responsible for my recent stress level increase. They informed me that Gavin's pump had to be ordered, but it had arrived and was going to be delivered today. I'm glad it's going to be here today, assume it arrives because it hasn't yet. The frustrating part remains though. When it's known that something is this important and it won't arrive when promised, a quick phone call would have alleviated a great deal of stress from the last week or so. Shit, for that matter a returned phone call would have worked as well. At this point, as long as it arrives today and Gavin can do his infusion in the morning without having to worry about the pump dying on…

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I’m really getting pissed

I left a third message at the pharmacy that supplies Gavin's IVIG infusion supplies. You can't just get these anywhere, as they are considered specialized items or something to that effect. The pump that Gavin's been using for his IVIG infusions is going bad. It's about five years old. It's successfully delivered nearly five hundred infusions for Gavin but it's on its last leg. It no longer applies consistent pressure and that makes for a difficult infusion. I called on January 2nd to have a new one delivered. I was promised it would be here by last Friday, in time for Gavin's infusion that day. It never arrived and they never provided an explanation as to why. As I stated above, I've left three messages this week alone and not…

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