It’s so hard to shutdown when you’re an #Autism parent  

I'm laying in bed at 2:30am, unable to sleep and it's really frustrating.   All I want to do during the day is just curl up in a ball on the floor and sleep but I can't. When I do get a chance to sleep, I lay here and can't shutdown.   It should be said that for Autism parents, it can be extremely difficult to shutdown, even though they desperately want to sleep.  That's something that I struggle with rather frequently myself.   There's so much adrenaline being pumped through my body during the day because of this constant state of hyper-vigilance, it just takes its toll. For many of us as well, we sleep with one eye open and an ear to the ground because we can never…

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Gavin had a bad reaction to his IVIG infusion tonight because apparently, life isn’t challenging enough already 

As you know, Gavin receives IVIG infusions twice a week because he's living with a severely compromised immune system. The actual medication is called GAMMAGARD and it's basically made up of antibodies from many, many different donors. This replaces the defunct antibodies in Gavin's body, for a short period of time. He's been receiving these infusions for many years now and will continue for the rest of his life. Now we're all caught up and everyone is on the same page. Gavin received his IVIG infusion tonight and the infusion itself went well. The actual infusions themselves usually go well.  Sometimes we hit some snags but that's really the exception to the rule. What happened tonight was a bad reaction. It happens on occasion but it hasn't happened in a…

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Are you ready for the new school year? 

The boys go back to school on Wednesday.  That's also my birthday, in case anyone's wondering.  Talk about a birthday gift from above...  ☺  While I'll miss my two youngest, I totally need the break because it will allow me to get back on track.  I've got things to do and weight to lose.  It all begins Wednesday.   Are you ready for your kids to return to school? Do you have concerns about this transition? 

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Meltdowns, Bouncing and Think to Breathe Mode

OMG....  The boys are so hyper today and are literally bouncing off of any surface they can. Elliott didn't sleep much last night because his bed had been vandalized by Maggie.  See the previous post for this crazy story and the video to prove it. The level of sensitive that Elliott possesses is such that he took it very personally, that Maggie picked his bed to pee on.  He thought she was mad at him or something and just felt terrible. Anyway, he might be a little punch drunk right now from lack of sleep. Emmett's just all over the place today. He's happy then frustrated and angry.  He sorta cycles through these emotional states but does so at a volume that is beyond that of an outside voice.  Gavin…

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Our Naughty Dog Caught On Camera: You have to see this to believe it (@vivinthome)

It's been a really long night already and it's not over yet.  The boys came home today and when we went tried to put them in bed, we ran into a a problem.   Elliott soon discovered that his bed was soaked and I mean soaked. I'm not talking someone spilled a water bottle kinda wet either.  We're talking someone or something dropped like a gallon of pee all over his bed.  Everyone was confused because the amount was so much that it had to be a person.   With the boys being gone all day, we could rule them out and I know of it wasn't Lizze or myself.   I had no idea what happened.  Then it occurred to me that I could check the camera feed from…

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A small break does a Daddy good

The boys are gone for a day of fun with their Grandma, Great Aunt and some cousins.  They're going to be touring a local chocolate factory.   Lizze and I are really tired and will be taking advantage of the rest.   I haven't even thought about dinner yet but I suppose I should.  Grocery shopping didn't happen because our budget fell through.  I should be able to go on Saturday, so we only have to make it one more day.   I've been sitting on the porch, listening to neighbors fighting but trying to enjoy the weather anyway, cause it's beautiful.  Lizze is taking a nap on the couch but she did some writing today as well. She's opened up about the classes she's been taking and why she's…

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A break from the chaotic week

It's going to be a slower day for us.  That's not a bad thing at all because it's been a really challenging week so far.   Lizze has an appointment in the morning and when she gets home, I have to take Gavin for his bloodwork. At some point, God willing, we'll go grocery shopping.  One of my goals is to get caught up on some writing, reviews and get my monthly newsletter back on track.  It's been a few months since I've published one and I'm supposed to be doing it monthly.   Depending on the weather, maybe I'll work in the yard for a little while. My Dad and I have been working on getting the outside of the house caught up. It's a lot of work but…

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You won’t believe what I’ve found in my bed over the last three or four nights

As I get back into writing after a day or two of life getting in the way, I thought I would start off with something that's just too fricking adorable and precious, not to share.   As you know, Emmett and sometimes Elliott, just can't fall asleep in their own beds.   This is habitual for Emmett and occasional for Elliott.   I don't know what's behind this for sure but I know Emmett has nightmares and Elliott has anxiety. They can't seem to relax or feel safe enough to fall asleep, unless their in our bed.   This is especially true for Emmett.   What happens is that they will try to fall asleep in their own beds. Elliott usually can but Emmett simply cannot.   After an hour…

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