Read more about the article Here’s an update
General Update / My thoughts

Here’s an update

It's been such a long day. The boys were picked up bright and early by my Mom, and Lizze and I were off to the hospital. Her Dad has been in surgery for most of the afternoon. We were sent home after awhile but everything seemed to be going well. Apparently after this type of surgery, they keep the patient completely sedated for at least twenty four hours after. I'm intentionally leaving this vague because Lizze will have a more detailed post when she's feeling up to it. Check here. Speaking of Lizze, she's having a bit of a rough time with all of this. She's not slept well but is currently sleeping right now. The boys are at dinner with my parents and will be home in a little…

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August 31, 2017
Read more about the article Gavin’s driving me crazy because apparently, I’m not stressed out enough already
Gavin / My thoughts

Gavin’s driving me crazy because apparently, I’m not stressed out enough already

I'm going to try and keep things on track and if you're looking for updates on Lizze's Dad, please check here. If Lizze isn't up to it, she may ask me to convey her thoughts. Having said that, while we haven't noticed any changes in Gavin's behavior yet, his typical behavior is overwhelming enough already. Gavin's truly the sweetest kid, and I couldn't be any prouder of him. At the same time, he's been driving me crazy (yes, I know that's a short trip). I love him dearly but he will not stop talking. He's in one of those places where I'm not sure he even realizes that he talking outloud. Lately, he's been verbalizing every thought that comes into his mind. There's some strange shit that goes through his…

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August 31, 2017
Read more about the article When it comes to family, we do what we have to do
My thoughts

When it comes to family, we do what we have to do

Our week has been re-prioritized in the wake on my father in laws heart attack. My Mom is going to be taking the boys to school and then hanging out with Gavin. This is a huge help because we need to get back to the hospital as early as we can. Right now, what matters most is rallying around our family and being there for whatever is needed. The boys are aware that Grandpa's sick and in the hospital getting better. They don't need to know any more than that at this point, and frankly, the only reason we said anything is because they overheard someone asking how her Dad was doing. They seem to be doing okay with it and that makes it much easier for us to redirect…

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August 31, 2017
Read more about the article Please send your thoughts and prayers
Thoughts and Prayers

Please send your thoughts and prayers

Without going into much detail, I'm writing tonight in order to ask that you guys send your positive thoughts and prayers in our direction. On Wednesday afternoon, Lizze's Dad suffered a massive heart attack. He will be undergoing quintuple bypass surgery in the morning. This is very serious but hope is high that the surgery will go well and he will be back in his feet. Please send your positive thoughts and/or prayers. They are greatly appreciated and humbly accepted.

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August 31, 2017
Read more about the article We haven’t noticed any changes yet
Clozapine / Gavin / My thoughts

We haven’t noticed any changes yet

Today was the first day that Gavin's Clozapine was reduced to 500 mg/day. Lizze and I haven't noticed any changes yet and that's to be expected. I believe Clozapine has a very short half-life, meaning it doesn't linger and needs constant maintenance doses. I would expect that if we are going to see any changes in behavior, we will see it over the next few days. If we don't see anything by the middle of next week, it's probably safe to say the reduced dose isn't negatively impacting his Schizophrenic symptoms. I've put my eggs in that basket because I'm not sure the Clozapine is doing anything anymore. Time will tell. Outside of that, the only issue Gavin was having today was pain in his legs. I'm not sure what that…

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August 31, 2017
Read more about the article This morning was stressful AF
Emmett John / My thoughts

This morning was stressful AF

We spent all morning listening to Emmett screaming. If he wasn't screaming about one thing, he was screaming about another. It's not the best way to start out the day. I've no idea why he was so out of sorts this morning, but it was awful. He did get off to school with Elliott but when we got to school, he realized he forgot his lunch. After I go for my walk, I'll have to make a return trip to the school to drop off his lunch. At this point, I'm so stressed out and I'm hoping a good walk will be just what the doctor ordered, in more ways than one.

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August 30, 2017
Read more about the article I’m hopeful this will produce a positive outcome
Clozapine Crisis / Gavin / My thoughts

I’m hopeful this will produce a positive outcome

Beginning today, Gavin will be on a reduced dose of Clozapine. We will be dropping from 600 mg/day, down to 500 mg/day until we return from Gavin's wish being granted by Wishes Can Happen in October. We don't want any medication changes to take place during the trip for a million reasons, one of them being we want Gavin to have fun. There's no way to really predict how Gavin is going to be reacting to this change in medication. We may see an increase of Schizophrenic symptoms, including a return to more dark and concerning behavior. We may also not see a change at all, and that will basically tell us, at the very least, he doesn't need the higher dose. If there's no change, we will continue to…

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August 30, 2017
Read more about the article How we ended a very stressful day
Lizze / My thoughts

How we ended a very stressful day

It's been a really long day and I haven't written much because I'm really tired. It's been an emotional roller-coaster today with all things Gavin. Rather than focus on that, I wanted to share how our day ended instead. After getting the boys to finally go to bed, Lizze and I settled in to watch a movie. I've been dying to see Wonder Woman but I couldn't get Lizze to go see it. It didn't interest her in the slightest, so I didn't push for it. It was released on Google Play yesterday and I've had it pre-ordered for awhile. Lizze begrudgingly agreed to watch it with me last night. She wasn't super excited about watching it but she was doing it for me. ☺ After about fifteen minutes, the…

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August 30, 2017