Here’s what happened at the Cleveland Clinic

I'm going to do my best to explain what happens yesterday at the Cleveland Clinic and I'm going to try and make this shirt and sweet.  For starters, Gavin's okay.  The eye exam part of his appointment showed no issues in structure but functionality would require further testing. That would only take place if the genetic testing comes back positive.    They took detailed picture of his teeth and eyes to further document where he is currently so changes would be easier to track.  Right now we just have to wait for the results of his DNA breakdown.  I should also add that this is all done free of charge because Gavin is now part of the a research project trying to learn more about this extremely rare disorder called…


God grant me patience because I’m gonna need it today

We finally made it. We arrived at 10:30 am for a 10:00 am appointment. It should take about an hour to get to the Cole Eye Institute and I gave myself an hour and a half to avoid being late but the drive took 2 hours.   Between potty breaks, getting pulled over, road construction, getting off in the wrong exit and more construction, it took an extra hour.  I'm not in a really good place at the moment and my stress level is approaching stroke levels.  Happy thoughts.  I'm going to think happy thoughts and pretend we aren't late and everything went perfectly. That's all I have left to do at the moment.