Bad news about Gavin’s appointment at the Cleveland Clinic tomorrow
I had to make an executive decision this afternoon and it's one I didn't want to have to make.
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June 14, 2016
There was a hiccup with Gavin’s latest genetic screening
There was a problem with the genetic sample that Gavin provided the Cleveland Clinic
March 29, 2016
Important Update to Gavin’s genetic testing for Jalili Syndrome
I received a call last year out of the blue from a genetic counselor at the Cleveland Clinic because Gavin's specialist at The Cole Eye Institute had reason to believe that Gavin may in fact have Jalili Syndrome.
January 15, 2016
It’s been a really long afternoon for this #Autism Dad
We finally made it home from the Cleveland Clinic
September 29, 2015
We finally made it to the Cleveland Clinic
It seems like the world is conspiring to make us late to Gavin's pediatric neurology appointment at the Cleveland Clinic. Here's what's happened..
September 29, 2015
Here’s what happened at the Cleveland Clinic
I'm going to do my best to explain what happens yesterday at the Cleveland Clinic and I'm going to try and make this shirt and sweet. For starters, Gavin's okay. The eye exam part of his appointment showed no issues in structure but functionality would require further testing. That would only take place if the genetic testing comes back positive. They took detailed picture of his teeth and eyes to further document where he is currently so changes would be easier to track. Right now we just have to wait for the results of his DNA breakdown. I should also add that this is all done free of charge because Gavin is now part of the a research project trying to learn more about this extremely rare disorder called…
August 26, 2015
God grant me patience because I’m gonna need it today
We finally made it. We arrived at 10:30 am for a 10:00 am appointment. It should take about an hour to get to the Cole Eye Institute and I gave myself an hour and a half to avoid being late but the drive took 2 hours. Between potty breaks, getting pulled over, road construction, getting off in the wrong exit and more construction, it took an extra hour. I'm not in a really good place at the moment and my stress level is approaching stroke levels. Happy thoughts. I'm going to think happy thoughts and pretend we aren't late and everything went perfectly. That's all I have left to do at the moment.
August 25, 2015
POSITIVE THOUGHTS PLEASE: We are on our way
The kids have been dropped off and we are on our way to battle insane traffic (for Ohio anyway) on our way to The Cleveland Clinic. Thoughts and prayers would be appreciated.
August 25, 2015