Recently, there was a delay in refilling Emmett’s antivirals that he takes for his fever disorder. With all that had been going on with Gavin recently, I’d opted to use this opportunity to see how he did without them. He did really well for about 2 weeks but just in case, I addressed the issue …
Category: Fever Cycle
Jan 17 2019
This is heartbreaking
Mr. Emmett is home from school today because he’s not feeling well. He’s been struggling with his fever disorder related mouth sores and he’s just reached a point where he’s sick to his stomach. Poor Emmett didn’t sleep much last night and is too much pain to go to school this morning. There’s very little …
Oct 29 2017
I’m totally lost and don’t know what to do
As of early this morning, it seems that Emmett is either sick or entering a fever cycle. There’s absolutely no way to know the difference.. If you’re wondering about Elliott, he’s still running a fever as well. WTF are we supposed to do about trick or treating today? The forecast is cold and rainy. Should …
Oct 22 2017
We might be staring down the barrel of another fever disorder?
As of this moment in time, Elliott is fever free. I’m not sure if he’s actually sick or not because he seems to run fevers (usually low grade but higher than Emmett) and not show any symptoms. This is where my sleep deprivation comes into play because it’s never really occurred to me that Elliott …
Jul 30 2017
He just breaks down in tears
Emmett is very unpleasant today. He’s freaking out over every single thing that doesn’t go right. Any tiny imperfection is leading to a massive meltdown. He’s still running a low grade fever, and is about waist deep inside of a fever flare. Emmett is a difficult kid on a good day, but he’s never like …
Jul 27 2017
Why lunch was a sensory nightmare
Emmett’s still in the opening stretch of his current fever cycle, and he’s incredibly difficult to manage as a result. I’ve mentioned before that when he’s in a fever flare, many of his Autism related challenges are exacerbated. Typically, the biggest challenge during the period of time the flare is active is sensory related. He …
Jul 26 2017
Heartbreaking: Emmett had a really rough night
I didn’t write much yesterday because it was a rather trying day. Whenever I don’t publish at least three or four posts a day, it’s a safe bet that things aren’t going so well. Yesterday was full of challenges related to Emmett’s fever disorder. He was in a horrible mood for most of the day …
Jul 25 2017
Living in #meltdown Hell
It’s safe to say that we are officially inside a fever cycle. If you look at the image below, you can see Emmett’s temperatures over the last couple of weeks. We crossed over the 100°F threshold, that is typical of a fever flare. If that wasn’t evidence enough, his demeanor has been a kick in …
- 1
- 2