Heartbreaking: Emmett had a really rough night

I didn’t write much yesterday because it was a rather trying day. Whenever I don’t publish at least three or four posts a day, it’s a safe bet that things aren’t going so well.

Yesterday was full of challenges related to Emmett’s fever disorder. He was in a horrible mood for most of the day and had zero tolerance for pretty much everything. I lost track of the meltdowns, but there were quite a few. 

I personally had the hardest time when it came to dinner. There wasn’t anything in the house that he would eat. 

Emmett’s tough to feed on a good day, very challenging to feed on a bad day, and impossible when he’s in a fever cycle. Last night was one of those impossible times, and it sucked. 

Poor Emmett was really hungry, but his very limited list of tolerable foods is even more limited when he’s in a fever flare. When he’s in a flare, he becomes so much more sensitive to everything around him. He becomes overwhelmed very quickly, and his sensory issues kick into overdrive. 

This typically lasts for the duration of the flare, and that can last up to ten days or more. Like I said, it sucks. 

Last night there wasn’t anything Emmett would eat, and at 7 pm, I ended up running to the grocery store to pick up a few items that I was pretty sure he would eat. 

page 1/2

Rob Gorski

Full time, work from home single Dad to my 3 amazing boys. Oh...and creator fo this blog. :-)
0 0 votes
Article Rating

Join The Conversation

This site uses Akismet to reduce spam. Learn how your comment data is processed.

32 Comments
most voted
newest oldest
Inline Feedbacks
View all comments
kimmy gebhardt

If ham is a go-to for him then wait until whole hams or even ham steaks go on sale and freeze them. I buy whole hams, cook, slice, and freeze in individual portions. You can also make soup from the ham home and freeze that in individual portions by putting it in Ziploc freezer bags. Even if the kids won’t eat some of this stuff, it will make it easier for you to eat fresh food instead of frozen chicken patties. There are a lot of things that can be made in bulk and frozen which would certainly help with your food budget and your diet. I know you told me that what you eat isn’t really impacting your budget, but that really can’t be the case. If you are eating then you are part of the food budget- it really is as simple as that.

Rob Gorski

First of all, freezing is a great idea and I already buy quite a few. I didn’t know about the ham until he discovered that he will eat it outside of Easter. Yes, he’s weird about things like that. He would eat ham except for Easter.

I can buy some things in bulk but we have very limited freezer space. When I can, I need to invest in a freezer chest or something like that.

As for my diet, aside from fruit, I order SlimFast powder at the beginning of the month it’s roughly $20 for the month. I also use vegan protein powder, and that’s about the same. I usually eat one actual meal a day and so I’m not a huge drain on the pantry in that sense.

I meant that I wasn’t significantly impacting the budget. Of course, I have an impact, but I purposefully go out of my way to focus on things that are helping me lose weight while maintaining nutrition.

Excellent advice… ☺

PonyGirl

While I’m glad he found something to eat, it is kind of dishonest and a little angering that you are trying to insinuate his fever flares are the reason for being a little short in the budget this month/week. You have been fairly free spending the past few weeks it seems…

Rob Gorski

Wow.. Okay.

You can think what you want but you’re not in my shoes. Making a judgment like that is sorta arrogant.

The fever flare absolutely impact because when they hit, we have to make significant, and costly changes. I never blamed Emmett or his flare for the cash flow issue. I simply said the extra trip to grocery store was unplanned. Regardless of what you think, it has an impact. Sharing the impact is called transparency. You may not get it, but there are many others who do.

If you’re actually getting angry, I suggest you take a break from reading.

This is my life and the life of my family. I’m always open to comments like Kim’s above. These judgemental comments really serve no purpose.

As for freely spending money, we went to dinner as a family once, and a movie. Sometimes it’s nice to be able to do things that help us to provide a sense of normalcy.

I appreciate your opinion but I’m not looking for your approval.. Please have a great day. ☺

Ponygirl

I think any time you see my posts you already start reading in the negative and it isn’t supposed to be.

Of course the fever flare has an impact, on everything. but you said this unplanned trip drained you.

And I would offer advice like Kimmy up there but like I said, you always read everything I post in a negative light.

In fact I asked about the double money on fresh fruits and veggies with food assistance cards and you didn’t even acknowledge it.

I’m not really angry, it was just how I read it, that you were blaming the fever flare

And you’re right, I don’t get the going out to dinner and a movie, I mostly stay home. Crowds really bother me, normalcy for me is going to the park for a walk or out in the woods

Of course you don’t need my approval, I’m not here to give it.

PonyGirl

While I’m glad he found something to eat, it is kind of dishonest and a little angering that you are trying to insinuate his fever flares are the reason for being a little short in the budget this month/week. You have been fairly free spending the past few weeks it seems…

Rob Gorski

Wow.. Okay.

You can think what you want but you’re not in my shoes. Making a judgment like that is sorta arrogant.

The fever flare absolutely impact because when they hit, we have to make significant, and costly changes. I never blamed Emmett or his flare for the cash flow issue. I simply said the extra trip to grocery store was unplanned. Regardless of what you think, it has an impact. Sharing the impact is called transparency. You may not get it, but there are many others who do.

If you’re actually getting angry, I suggest you take a break from reading.

This is my life and the life of my family. I’m always open to comments like Kim’s above. These judgemental comments really serve no purpose.

As for freely spending money, we went to dinner as a family once, and a movie. Sometimes it’s nice to be able to do things that help us to provide a sense of normalcy.

I appreciate your opinion but I’m not looking for your approval.. Please have a great day. ☺

Ponygirl

I think any time you see my posts you already start reading in the negative and it isn’t supposed to be.

Of course the fever flare has an impact, on everything. but you said this unplanned trip drained you.

And I would offer advice like Kimmy up there but like I said, you always read everything I post in a negative light.

In fact I asked about the double money on fresh fruits and veggies with food assistance cards and you didn’t even acknowledge it.

I’m not really angry, it was just how I read it, that you were blaming the fever flare

And you’re right, I don’t get the going out to dinner and a movie, I mostly stay home. Crowds really bother me, normalcy for me is going to the park for a walk or out in the woods

Of course you don’t need my approval, I’m not here to give it.

kimmy gebhardt

If ham is a go-to for him then wait until whole hams or even ham steaks go on sale and freeze them. I buy whole hams, cook, slice, and freeze in individual portions. You can also make soup from the ham home and freeze that in individual portions by putting it in Ziploc freezer bags. Even if the kids won’t eat some of this stuff, it will make it easier for you to eat fresh food instead of frozen chicken patties. There are a lot of things that can be made in bulk and frozen which would certainly help with your food budget and your diet. I know you told me that what you eat isn’t really impacting your budget, but that really can’t be the case. If you are eating then you are part of the food budget- it really is as simple as that.

Rob Gorski

First of all, freezing is a great idea and I already buy quite a few. I didn’t know about the ham until he discovered that he will eat it outside of Easter. Yes, he’s weird about things like that. He would eat ham except for Easter.

I can buy some things in bulk but we have very limited freezer space. When I can, I need to invest in a freezer chest or something like that.

As for my diet, aside from fruit, I order SlimFast powder at the beginning of the month it’s roughly $20 for the month. I also use vegan protein powder, and that’s about the same. I usually eat one actual meal a day and so I’m not a huge drain on the pantry in that sense.

I meant that I wasn’t significantly impacting the budget. Of course, I have an impact, but I purposefully go out of my way to focus on things that are helping me lose weight while maintaining nutrition.

Excellent advice… ☺

PonyGirl

While I’m glad he found something to eat, it is kind of dishonest and a little angering that you are trying to insinuate his fever flares are the reason for being a little short in the budget this month/week. You have been fairly free spending the past few weeks it seems…

Rob Gorski

Wow.. Okay.

You can think what you want but you’re not in my shoes. Making a judgment like that is sorta arrogant.

The fever flare absolutely impact because when they hit, we have to make significant, and costly changes. I never blamed Emmett or his flare for the cash flow issue. I simply said the extra trip to grocery store was unplanned. Regardless of what you think, it has an impact. Sharing the impact is called transparency. You may not get it, but there are many others who do.

If you’re actually getting angry, I suggest you take a break from reading.

This is my life and the life of my family. I’m always open to comments like Kim’s above. These judgemental comments really serve no purpose.

As for freely spending money, we went to dinner as a family once, and a movie. Sometimes it’s nice to be able to do things that help us to provide a sense of normalcy.

I appreciate your opinion but I’m not looking for your approval.. Please have a great day. ☺

Ponygirl

I think any time you see my posts you already start reading in the negative and it isn’t supposed to be.

Of course the fever flare has an impact, on everything. but you said this unplanned trip drained you.

And I would offer advice like Kimmy up there but like I said, you always read everything I post in a negative light.

In fact I asked about the double money on fresh fruits and veggies with food assistance cards and you didn’t even acknowledge it.

I’m not really angry, it was just how I read it, that you were blaming the fever flare

And you’re right, I don’t get the going out to dinner and a movie, I mostly stay home. Crowds really bother me, normalcy for me is going to the park for a walk or out in the woods

Of course you don’t need my approval, I’m not here to give it.

Rob Gorski

I do like your new screen name. They say the four or fifth time is a charm. Perhaps you don’t realize how you come across, but it’s generally pretty judgemental. Perhaps you don’t mean it to come across that way, but it does. Making statements like you know my life or kids better than I do, will never be received well.

You’re always welcome to your opinion, but maybe ask yourself if it’s will benefit anyone by sharing it. Generally speaking, the above comment included, they don’t.

Like I said before, I’ll continue to let your comments stand, but please be a productive member of the conversation and think about how you say things before you submitt it.

I don’t need anyone to agree with me, but present your thoughts in a tactful, respectful way, and you’re likely to be taken more seriously.

kimmy gebhardt

If ham is a go-to for him then wait until whole hams or even ham steaks go on sale and freeze them. I buy whole hams, cook, slice, and freeze in individual portions. You can also make soup from the ham home and freeze that in individual portions by putting it in Ziploc freezer bags. Even if the kids won’t eat some of this stuff, it will make it easier for you to eat fresh food instead of frozen chicken patties. There are a lot of things that can be made in bulk and frozen which would certainly help with your food budget and your diet. I know you told me that what you eat isn’t really impacting your budget, but that really can’t be the case. If you are eating then you are part of the food budget- it really is as simple as that.

Rob Gorski

First of all, freezing is a great idea and I already buy quite a few. I didn’t know about the ham until he discovered that he will eat it outside of Easter. Yes, he’s weird about things like that. He would eat ham except for Easter.

I can buy some things in bulk but we have very limited freezer space. When I can, I need to invest in a freezer chest or something like that.

As for my diet, aside from fruit, I order SlimFast powder at the beginning of the month it’s roughly $20 for the month. I also use vegan protein powder, and that’s about the same. I usually eat one actual meal a day and so I’m not a huge drain on the pantry in that sense.

I meant that I wasn’t significantly impacting the budget. Of course, I have an impact, but I purposefully go out of my way to focus on things that are helping me lose weight while maintaining nutrition.

Excellent advice… ☺

kimmy gebhardt

If ham is a go-to for him then wait until whole hams or even ham steaks go on sale and freeze them. I buy whole hams, cook, slice, and freeze in individual portions. You can also make soup from the ham home and freeze that in individual portions by putting it in Ziploc freezer bags. Even if the kids won’t eat some of this stuff, it will make it easier for you to eat fresh food instead of frozen chicken patties. There are a lot of things that can be made in bulk and frozen which would certainly help with your food budget and your diet. I know you told me that what you eat isn’t really impacting your budget, but that really can’t be the case. If you are eating then you are part of the food budget- it really is as simple as that.

Rob Gorski

First of all, freezing is a great idea and I already buy quite a few. I didn’t know about the ham until he discovered that he will eat it outside of Easter. Yes, he’s weird about things like that. He would eat ham except for Easter.

I can buy some things in bulk but we have very limited freezer space. When I can, I need to invest in a freezer chest or something like that.

As for my diet, aside from fruit, I order SlimFast powder at the beginning of the month it’s roughly $20 for the month. I also use vegan protein powder, and that’s about the same. I usually eat one actual meal a day and so I’m not a huge drain on the pantry in that sense.

I meant that I wasn’t significantly impacting the budget. Of course, I have an impact, but I purposefully go out of my way to focus on things that are helping me lose weight while maintaining nutrition.

Excellent advice… ☺

PonyGirl

While I’m glad he found something to eat, it is kind of dishonest and a little angering that you are trying to insinuate his fever flares are the reason for being a little short in the budget this month/week. You have been fairly free spending the past few weeks it seems…

Rob Gorski

Wow.. Okay.

You can think what you want but you’re not in my shoes. Making a judgment like that is sorta arrogant.

The fever flare absolutely impact because when they hit, we have to make significant, and costly changes. I never blamed Emmett or his flare for the cash flow issue. I simply said the extra trip to grocery store was unplanned. Regardless of what you think, it has an impact. Sharing the impact is called transparency. You may not get it, but there are many others who do.

If you’re actually getting angry, I suggest you take a break from reading.

This is my life and the life of my family. I’m always open to comments like Kim’s above. These judgemental comments really serve no purpose.

As for freely spending money, we went to dinner as a family once, and a movie. Sometimes it’s nice to be able to do things that help us to provide a sense of normalcy.

I appreciate your opinion but I’m not looking for your approval.. Please have a great day. ☺

Ponygirl

I think any time you see my posts you already start reading in the negative and it isn’t supposed to be.

Of course the fever flare has an impact, on everything. but you said this unplanned trip drained you.

And I would offer advice like Kimmy up there but like I said, you always read everything I post in a negative light.

In fact I asked about the double money on fresh fruits and veggies with food assistance cards and you didn’t even acknowledge it.

I’m not really angry, it was just how I read it, that you were blaming the fever flare

And you’re right, I don’t get the going out to dinner and a movie, I mostly stay home. Crowds really bother me, normalcy for me is going to the park for a walk or out in the woods

Of course you don’t need my approval, I’m not here to give it.

kimmy gebhardt

If ham is a go-to for him then wait until whole hams or even ham steaks go on sale and freeze them. I buy whole hams, cook, slice, and freeze in individual portions. You can also make soup from the ham home and freeze that in individual portions by putting it in Ziploc freezer bags. Even if the kids won’t eat some of this stuff, it will make it easier for you to eat fresh food instead of frozen chicken patties. There are a lot of things that can be made in bulk and frozen which would certainly help with your food budget and your diet. I know you told me that what you eat isn’t really impacting your budget, but that really can’t be the case. If you are eating then you are part of the food budget- it really is as simple as that.

Rob Gorski

First of all, freezing is a great idea and I already buy quite a few. I didn’t know about the ham until he discovered that he will eat it outside of Easter. Yes, he’s weird about things like that. He would eat ham except for Easter.

I can buy some things in bulk but we have very limited freezer space. When I can, I need to invest in a freezer chest or something like that.

As for my diet, aside from fruit, I order SlimFast powder at the beginning of the month it’s roughly $20 for the month. I also use vegan protein powder, and that’s about the same. I usually eat one actual meal a day and so I’m not a huge drain on the pantry in that sense.

I meant that I wasn’t significantly impacting the budget. Of course, I have an impact, but I purposefully go out of my way to focus on things that are helping me lose weight while maintaining nutrition.

Excellent advice… ☺

PonyGirl

While I’m glad he found something to eat, it is kind of dishonest and a little angering that you are trying to insinuate his fever flares are the reason for being a little short in the budget this month/week. You have been fairly free spending the past few weeks it seems…

Rob Gorski

Wow.. Okay.

You can think what you want but you’re not in my shoes. Making a judgment like that is sorta arrogant.

The fever flare absolutely impact because when they hit, we have to make significant, and costly changes. I never blamed Emmett or his flare for the cash flow issue. I simply said the extra trip to grocery store was unplanned. Regardless of what you think, it has an impact. Sharing the impact is called transparency. You may not get it, but there are many others who do.

If you’re actually getting angry, I suggest you take a break from reading.

This is my life and the life of my family. I’m always open to comments like Kim’s above. These judgemental comments really serve no purpose.

As for freely spending money, we went to dinner as a family once, and a movie. Sometimes it’s nice to be able to do things that help us to provide a sense of normalcy.

I appreciate your opinion but I’m not looking for your approval.. Please have a great day. ☺

Ponygirl

I think any time you see my posts you already start reading in the negative and it isn’t supposed to be.

Of course the fever flare has an impact, on everything. but you said this unplanned trip drained you.

And I would offer advice like Kimmy up there but like I said, you always read everything I post in a negative light.

In fact I asked about the double money on fresh fruits and veggies with food assistance cards and you didn’t even acknowledge it.

I’m not really angry, it was just how I read it, that you were blaming the fever flare

And you’re right, I don’t get the going out to dinner and a movie, I mostly stay home. Crowds really bother me, normalcy for me is going to the park for a walk or out in the woods

Of course you don’t need my approval, I’m not here to give it.

kimmy gebhardt

If ham is a go-to for him then wait until whole hams or even ham steaks go on sale and freeze them. I buy whole hams, cook, slice, and freeze in individual portions. You can also make soup from the ham home and freeze that in individual portions by putting it in Ziploc freezer bags. Even if the kids won’t eat some of this stuff, it will make it easier for you to eat fresh food instead of frozen chicken patties. There are a lot of things that can be made in bulk and frozen which would certainly help with your food budget and your diet. I know you told me that what you eat isn’t really impacting your budget, but that really can’t be the case. If you are eating then you are part of the food budget- it really is as simple as that.

Rob Gorski

First of all, freezing is a great idea and I already buy quite a few. I didn’t know about the ham until he discovered that he will eat it outside of Easter. Yes, he’s weird about things like that. He would eat ham except for Easter.

I can buy some things in bulk but we have very limited freezer space. When I can, I need to invest in a freezer chest or something like that.

As for my diet, aside from fruit, I order SlimFast powder at the beginning of the month it’s roughly $20 for the month. I also use vegan protein powder, and that’s about the same. I usually eat one actual meal a day and so I’m not a huge drain on the pantry in that sense.

I meant that I wasn’t significantly impacting the budget. Of course, I have an impact, but I purposefully go out of my way to focus on things that are helping me lose weight while maintaining nutrition.

Excellent advice… ☺

PonyGirl

While I’m glad he found something to eat, it is kind of dishonest and a little angering that you are trying to insinuate his fever flares are the reason for being a little short in the budget this month/week. You have been fairly free spending the past few weeks it seems…

Rob Gorski

Wow.. Okay.

You can think what you want but you’re not in my shoes. Making a judgment like that is sorta arrogant.

The fever flare absolutely impact because when they hit, we have to make significant, and costly changes. I never blamed Emmett or his flare for the cash flow issue. I simply said the extra trip to grocery store was unplanned. Regardless of what you think, it has an impact. Sharing the impact is called transparency. You may not get it, but there are many others who do.

If you’re actually getting angry, I suggest you take a break from reading.

This is my life and the life of my family. I’m always open to comments like Kim’s above. These judgemental comments really serve no purpose.

As for freely spending money, we went to dinner as a family once, and a movie. Sometimes it’s nice to be able to do things that help us to provide a sense of normalcy.

I appreciate your opinion but I’m not looking for your approval.. Please have a great day. ☺

Ponygirl

I think any time you see my posts you already start reading in the negative and it isn’t supposed to be.

Of course the fever flare has an impact, on everything. but you said this unplanned trip drained you.

And I would offer advice like Kimmy up there but like I said, you always read everything I post in a negative light.

In fact I asked about the double money on fresh fruits and veggies with food assistance cards and you didn’t even acknowledge it.

I’m not really angry, it was just how I read it, that you were blaming the fever flare

And you’re right, I don’t get the going out to dinner and a movie, I mostly stay home. Crowds really bother me, normalcy for me is going to the park for a walk or out in the woods

Of course you don’t need my approval, I’m not here to give it.

Rob Gorski

I do like your new screen name. They say the four or fifth time is a charm. Perhaps you don’t realize how you come across, but it’s generally pretty judgemental. Perhaps you don’t mean it to come across that way, but it does. Making statements like you know my life or kids better than I do, will never be received well.

You’re always welcome to your opinion, but maybe ask yourself if it’s will benefit anyone by sharing it. Generally speaking, the above comment included, they don’t.

Like I said before, I’ll continue to let your comments stand, but please be a productive member of the conversation and think about how you say things before you submitt it.

I don’t need anyone to agree with me, but present your thoughts in a tactful, respectful way, and you’re likely to be taken more seriously.