Feb 07 2021
Gavin is bound and determined to move out. Until recently, I hadn’t really considered that to be an option but this is what he wants. As his parent, I want him to reach whatever level of independence he can achieve. With that in mind, I’m getting the ball rolling on this. The process is likely …
Jan 18 2021
It’s Gavin’s 21st birthday and we were off to a good start. His IVIG Infusion supplies showed up and he immediately went to work. Whenever he gets his supplies, I’ve taught him to put together kits containing everything he needs for each infusion. This serves a dual purpose. It helps him to learn how to …
Jan 10 2021
I’ve mentioned this a few times before but Gavin and I have a unique relationship. We’re very very close and direct with each other. I’ve learned over 20 years that Gavin needs people to be very direct with him. If you give him any room to interpret the meaning in your words, he will often …
Dec 12 2020
I know some of you may not get how unbelievably awesome this is but I’m sure you’ll be excited for Gavin nonetheless. Gavin has made it very clear that he wants to live with peers or other people his age, likely walking a similar path in life. Lizze and I have been talking about this …
Nov 30 2020
It’s been a really challenging day for about a million reasons. I was going to touch on some of those reasons but yet another issue has made itself known and this is going to be the priority until I know otherwise. Gavin is running what is a low grade fever for him. He’s very much …
Oct 21 2020
You may not know this but I adopted my oldest. I don’t talk about this a whole lot because frankly, I never really think about it anymore. The only time it’s at the forefront of my mind in on October 22 of each year. As it’s October 22, or will be by the time you …
Oct 03 2020
It’s been a long day but a pretty good one. I didn’t write yesterday cause I was not really in a place where I felt like writing. I spent the time connecting with other parents instead and that was really cool. Yesterday, I had to take Gavin for another round of blood work, this time …
Sep 26 2020
I met with Gavin’s genetic counselor this afternoon, to go over the results of his exome sequencing. This has been a long time in the making I want to give a huge shout out to Probably Genetic for all their help. Essentially, what I learned is that we really didn’t learn a whole lot. I …
