Sep 07 2018
Gavin is officially out of his IVIG medication and he’s not been able to do his IVIG infusion today as a result. I’ve spoken with the home care pharmacy that’s responsible for delivering these life saving medications and they’re out for delivery today. That’s good to hear, it really is.. That being said, why do …
Sep 03 2018
I feel like I slept pretty okay-ish last night. I went walking first thing this morning while Gavin was doing his IVIG infusion. We hit an unexpected snag in today’s plans. The idea was to walk and then take Gavin to get his bloodwork done.. Unfortunately, the lab was closed today. I guess I wouldn’t …
Aug 27 2018
It’s been a rough morning for Gavin. I didn’t see too much of him until after I got home from taking the boys to school and getting my morning walk done on the way home. When I arrived home, Lizze was watching him get his IVIG infusion ready. I could see from the moment I …
Aug 20 2018
Gavin did a really good job this morning in regards to his IVIG infusion. He got up early and put it together, woke me up in order to check it and then completed the procedure without any help. For me personally, that’s a great way to start the week because so often he struggles with …
Jul 23 2018
As with every Monday and Friday for so many years now, Gavin needed his IVIG infusion this morning. Once again, Gavin put the supplies together in order to receive what essentially amounts to an antibody transfusion. This is only necessary because his body is unable to produce the necessary immunoglobulins needed to fight off infection. …
Jul 12 2018
So Gavin’s medication arrived. We went through the newly received supplies and figured out how to draw up the new solution. Previously, we were using 3, 10cc vials for a total of 30cc’s of solution. With the new medication, there are 2 vials total. The first vial contains 10cc’s and the second contains 5cc’s. That …
Jul 12 2018
After weeks of stress, worry, fear, frustration, anger and exhaustion, we should finally see Gavin’s IVIG infusion medication arrive today. We don’t have a specific time but it’s supposed to be before lunch. I can’t totally exhale until they actually arrive because this has been a serialistic nightmare this far. There have been a few …
Jul 10 2018
I received a call from Akron Children’s Home Health, the pharmacy we get Gavin’s IVIG infusion medication and supplies from. Everything is set and Gavin should have his new medication on Thursday morning. There was a slight delay because apparently, there were special contracts that needed to be signed in order for them to even …
