Autism Parenting Heartbreak Archives -

Category: Autism Parenting Heartbreak

I was completely unprepared my #Autistic son’s heartbreaking emotional reaction

One of the biggest challenges my wife and I have faced as Autism parents is something that thankfully, doesn’t present itself very often. When it does, however, it’s very difficult to navigate. That challenge has to do with the death of a family member. Thankfully, that doesn’t occur very often, but it’s something that we …

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Heartbreaking: We do what we must for those that we love

I’m way behind on this update, but life has been getting in the way of writing. That said, what better time than the present to get everyone caught up. This particular update is in regards to Gavin and Wednesday night therapy. I had mentioned that he was chomping at the bit to update us on …

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The reason my youngest is distressed is heartbreaking for me

There are times when I can distance myself from my feelings, focus on facts and remain objective. There are also times like tonight when I can’t and emotions rule the roost. I’ve mentioned recently that Emmett, my youngest of three Autistic boys, is struggling lately. He’s been the focus of recent family therapy sessions. Emmett …

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Writing with tear filled eyes

Gavin’s having a very rough day. On a good day, he’s not running on all cylinders but anymore, it seems like his engine is barely turning over. He’s not problem-solving anything lately. I have a really good example of this and it took place yesterday around lunchtime. While Gavin was making his lunch, he stopped, …

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We had the worst #meltdown in 5 or 6 years yesterday and we’re facing some heartbreaking decisions

We’ve actually had to put something back on the table that we’d previously taken off. That’s revisiting whether or not Gavin would be better off in a group home type environment.

It’s been an incredibly long and heartbreaking day

I’m going to keep this super quick because I’m exhausted and if I can get the kids to fall asleep, I’m going straight to bed. It’s been a really long day, full of tears and heartache. Yesterday I shared about a very difficult decision we might be having to make in regards to Zane, one …

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It’s crushing to hear your child say they feel dead inside

We had a pretty rough evening with Elliott. I don’t talk about this a great deal but he’s seriously struggling and it’s absolutely breaking my heart. He has very little control over his emotions and seems to cycle through the full gamut in a very short period of time. I think at the very least, …

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Emotionally absorbing another heartbreaking struggle, it must be Monday

As with every Monday and Friday for so many years now, Gavin needed his IVIG infusion this morning. Once again, Gavin put the supplies together in order to receive what essentially amounts to an antibody transfusion. This is only necessary because his body is unable to produce the necessary immunoglobulins needed to fight off infection. …

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