Read more about the article As much as I want to, I can’t send the kids to school today
My thoughts

As much as I want to, I can’t send the kids to school today

You know tomorrow is going to be a good day when you're already emailing the school to call the kids off and it isn't even dinner time yet. The boys are still not feeling well and as much as I'd like to send them to school because they're driving me crazy, they need to stay home. They need their rest and I hope they feel better soon. Both the boys aren't feeling well but they're also hyper as fuck, hence the driving me crazy statement above. Kids on the Autism Spectrum seems to react strangely when they're sick. When Gavin was younger, he would lose his Autism symptoms while running a high fever. That's a documented phenomenon and there's not a known explanation. The boys on the other hand, tend…

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January 19, 2018
Read more about the article It all started 18 years ago, at 10:52 AM
Gavin / Happy Birthday / My thoughts

It all started 18 years ago, at 10:52 AM

There are days that arrive and bring with them a profound sense of consternation. For me personally, today was one of those rare days in my life. There are many reasons why today has so much meaning but I want to focus on the single, most important one. On January 18, 2000 at 10:52 AM, Gavin was born into this world. While I wasn't present at that point in time, Gavin wouldn't enter my life for another year or so. Gavin has faced so many obstacles in his young life. Some of these obstacles were familial in nature while others were physical and emotional in nature. This young man has been through more in his short life, than most people would in two lifetimes. As a family, we've been through…

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January 18, 2018
Read more about the article Why is this so fucking complicated?
Clozapine / Gavin / Medication Management / My thoughts

Why is this so fucking complicated?

The goddamn pharmacy didn't get Gavin's Clozapine filled in time for the second week in a row. This is very time sensitive and it's in a set schedule. Gavin gets his bloodwork done on Monday or Tuesday and they pull the labs Tuesday afternoon. The script gets filled and delivered by Wednesday afternoon. It's really not that complicated because it's the same thing each week. I made several phone calls at the beginning of the week to ensure everything was in order. I even called late Tuesday afternoon to remind them to call for the labs and make sure the script was either ready for pickup or delivered by Wednesday afternoon. I was assured this wouldn't be a problem. Thankfully, we have an emergency supply to cover for disruptions like…

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January 18, 2018
Read more about the article I’m not sure what we’re dealing with but we survived the day
Elliott / Emmett's Art / My thoughts

I’m not sure what we’re dealing with but we survived the day

I survived the day. That's something to celebrate because there were times I didn't think I would. ☺ Emmett seems to be doing better but Elliott went to bed not feeling well. There's all kinds of shit going around the school, so that may be what's going on. At this point in time, no one's puking and that makes me happy. I hate puking and I hate when the kids puke. Puking doesn't gross me out or anything like that. It's easy to aspirate when puking and that's not a good thing. I learned all these things when I was a medic and some are etched into my brain. I'm not sure what the morning holds but if they aren't feeling good, I'm not going to push them. There's too…

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January 17, 2018
Read more about the article A massive meltdown set the tone for the entire day and that sucks
Elliott / Emmett John / Meltdowns / My thoughts / School

A massive meltdown set the tone for the entire day and that sucks

It's been one of those days where I'm not sure how we've made it this far. lol For the first time in awhile, Emmett almost didn't make it to school because of sensory processing issues. Those issues were of course related to his clothes. Truthfully, I don't think he was feeling well. He was complaining of a headache and tummyache but I don't know if that was behind his struggles or just influencing them. By the time we worked through it, we were an hour late to school and they had missed breakfast. We stopped by McDonald's on the way so the boys could get something to eat before dropping them off at school. Emmett was hanging on by a thread already but when McDonald's screwed up his order not…

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January 17, 2018
Read more about the article 3 Ways You Can Integrate Technology Into Your Children’s Education
Contributed / My thoughts / Sponsored Post

3 Ways You Can Integrate Technology Into Your Children’s Education

This is a collaborative post and does not necessarily represent the views and opinions of this blog or its owner.   If you rewind time 25-30 years, you will see a world that barely included technology as part of everyday life. Children, in particular, were sent out to play after breakfast, with the only instruction being that they had to return home when the streetlights came on. It can be very difficult, therefore, for parents to want to integrate technology into the day to day life of their children when they didn’t have it in their own youth. Image Source Bringing technology into the world of your children is more than just choosing the pretty iPad covers and deciding which model to go with to optimise their experience. There are…

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January 17, 2018
Read more about the article Updates so big they almost don’t fit
My thoughts / Updates

Updates so big they almost don’t fit

There are a few things I need to update you all on. Some are bigger deals than others but all remain important. They aren't in any particular order of importance. It's just the order they popped out of my head. ☺ Gavin's spending the night and most of the day tomorrow with his grandparents. They will be celebrating his birthday with him and taking him shopping. Gavin was really excited and I'm happy to see him that way. An odd thing happened this morning. If I hadn't seen it myself, I wouldn't believe it. Emmett decided to wear socks to school today. This kid hasn't worn socks for the better part of two years now. I've no idea what brought this on and whether or not it was a one…

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January 16, 2018
Read more about the article When your special needs child turns 18
Gavin / My thoughts

When your special needs child turns 18

I just got a letter from Social Security in regards to Gavin. He and I have an appointment with social security on January 25th in regards to Gavin becoming an adult. Part of Gavin turning eighteen means that things like this are going to come up. We're currently working on permanent guardianship, which will continue to allow us to manage Gavin's life when he can't do so for himself. Gavin's nervous about going because he's never had to go to one of these before and he's concerned about shots. I'm not sure where that came from but in his head, he think the social security worker will want to give him a shot. This appointment will be the first that we have to attend in order to keep Gavin's affairs…

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January 16, 2018