My thoughts Archives - Page 393 of 1481

Gavin had a major diagnosis change today

Gavin and I met with Dr. Reynolds this morning. Lizze wasn't feeling well and was resting up so she would be better when the kids got home from school. Sometimes we have to divide and conquer. Today's appointment was basically supposed to be a followup, because we had discontinued the Lithium last month. Dr. Reynolds wanted to make sure everything was okay. We met for quite awhile, and the discussion turned to something I hadn't planned on. I asked the question, at what point do we revisit his Schizoaffective diagnosis and look at straight up Schizophrenia? The reason I asked this question is because we haven't reevaluated him in a long time and his symptoms have changed as he's gotten older. Long story short, Gavin's official diagnosis has changed to…

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April 26, 2017

Gavin / My thoughts

Why this #Autism Dad feels guilty today

It's already one of those days where I'm feeling very guilty. It's the kind of guilt one feels when their special needs child is driving them fucking crazy. By sharing this, I know it's almost hypocritical because I'm always telling my readers not to feel guilty. The truth is, sometimes there's nothing that can stop the overwhelming feelings of guilt. I'm feeling guilty today because I'm really struggling with Gavin this morning. He's very slowly processing everything around him today, and I'm in a hurry because we have Dr. Reynolds to be at, first thing. It's almost like he's unable to think. He's not even able to answer some of my simple questions. We're sitting here in the waiting room at Dr. Reynolds, and Gavin's starts doing the potty…

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April 26, 2017

Honesty Post / My thoughts

It’s like being kicked in the balls

Lizze and I are really heartbroken over the amount of regression Gavin's been experiencing lately. Today was particularly difficult because Gavin was clearly struggling in many areas. On one hand, I sent Gavin in to Clearwater to refill one of our five gallon water jugs, while I watched him from outside the store. He had to buy a token, lid and then fill the jug up before carrying it out and putting it into the trunk. This is only the second time he's done this and he did a really good job. At the same time, he can't remember how to type the code into the keyless entry on the front door. He's been able to do it for the last two years, but lately he can't remember the code…

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April 26, 2017

General Update / My thoughts

This is how my morning has gone

It's been a somewhat decent morning, and for that we're grateful. Lizze and I went to bed early last night, at least early for us. The boys got up really early and began invading our bedroom at the unholy hour of 5 AM. Despite a decent night's sleep, I'm feeling exhausted, but in a good mood. On the bright side, Emmett is tolerating his clothes this morning and that means we don't have to battle for an hour. That's hugely positive and I'm very proud of him. All I have to do is get them off to school and our morning is officially underway.. ☺

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April 25, 2017

#Autism Question of The Day / My thoughts

Would you take your child with #Autism to a funeral? 7 things to think about

I know this will sound like a weird question but Would you take your child with #Autism to a funeral? The reason I'm asking, is because it's one question that I'm commonly asked, and I thought it was important enough to discuss. There isn't an easy answer to this question, but I do have a few thoughts. We've not been in this situation for a long time, but when Gavin was little, there were several deaths in the family and we chose not to take Gavin to the funeral. That wasn't an easy decision, but after speaking with his mental health professionals, it was deemed to be not in his best interest to go. At that point, Gavin was roughly five or six years old I believe, and not emotionally equipped…

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April 24, 2017

My thoughts

The 6 appointments I need to make today

I have so much to do today, and I'm kinda excited to get it done. I have a new article to write and that outs money in the bank. The biggest thing I have to do today is schedule a ton of appointments. Gavin needs to see his neurologist at the Cleveland Clinic. This is for his Autonomic dysfunction, as well as his Epilepsy. We also need to get him into gastroenterology and rheumatology. He needs the gastro for his tummy issues and rheumatology for his joints. I also need to get Elliott and Emmett into the dentist. Elliott needs his last cavity filled and Emmett just chipped his front tooth. I don't know how soon they will want to get him in, but I imagine they'll want him sooner…

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April 24, 2017

Emmett John / My thoughts

Worst morning in a very long time

We had the worst morning in I can't remember how long. Emmett was having the worst morning ever. I'm not sure what was going on but he couldn't tolerate any of his clothes. Emmett's issues with clothes, extended well beyond the usual struggles with his shoes or socks. He was unable to tolerate his crocs, shorts and shirt today. The screaming was unbelievable and went on for almost an hour. By the time 8:30 AM rolled around, I decided to take Elliott to school and then finish dealing with whatever Emmett was going through. Leaving him behind wasn't something I wanted to do but Elliott needed to get to school and we were already thirty minutes later. The idea of being left behind, sorta jarred d Emmett enough to put…

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April 24, 2017

Bad News / Emmett John / My thoughts

Bad News

I'm going to start with the most important thing first and that's Emmett. Apparently, Emmett was climbing on a metal folding chair that Lizze sits on when she's reading to them at night. While he was climbing, he slipped and smashed his mouth into the metal frame of the chair. This resulted in him chipping his front tooth. Of course, this is an adult tooth. It doesn't appear to be that bad of a chip but we will call the dentist in the morning, get him and Elliott in for their checkup and whatever Emmett needs. He's not in any pain and I think the dentist will just sorta grind it down a little bit and leave it. It could have been much, much worse and I'm very grateful it…

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April 24, 2017