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Common Variable Immunodeficiency / Gavin / Immunology / My thoughts / Thrombocytopenia

We received heartbreaking news about Gavin’s health this morning 

"Right now I'm feeing like my world is crashing down around me. I'm sick to my stomach and I'm strattling a very fine line between bursting into tears just freaking out."

25 Comments
October 12, 2016
Read more about the article I’d rather my kids with #Autism get to school late but in a good mood
My thoughts / School

I’d rather my kids with #Autism get to school late but in a good mood

Sometimes it more important how your kids with #Autism arrive at school rather than when they arrive...

6 Comments
October 12, 2016
Read more about the article We’re done with the Cleveland Clinic for this week and here’s how everything went
Cleveland Clinic / Lizze / My thoughts

We’re done with the Cleveland Clinic for this week and here’s how everything went

"We have to go back once a week for the next three or four weeks and that's going to present a few challenges, both financially and logistically. I'll figure something out though."

0 Comments
October 11, 2016
Read more about the article I’m just chillin in the gigantic lobby at the @ClevelandClinic 
Cleveland Clinic / Lizze / My thoughts

I’m just chillin in the gigantic lobby at the @ClevelandClinic 

We had a good trip up to the Cleveland Clinic. Now I'm just trying to kill some time

0 Comments
October 11, 2016
Read more about the article We’re back at the @ClevelandClinic once again today
Cleveland Clinic / Lizze / My thoughts

We’re back at the @ClevelandClinic once again today

"Everything going on with Gavin is really taking its toll on both of us and we need the break, even if the entire trip is done in silence."

0 Comments
October 11, 2016
Read more about the article Gavin drove me crazy with his incessant talking on what’s probably the worst day I’ve had in awhile
Gavin / My thoughts

Gavin drove me crazy with his incessant talking on what’s probably the worst day I’ve had in awhile

"At the risk of sounding like a terrible parent, I'm going to admit that my oldest son Gavin, is driving me absolutely bat shit crazy. Some would argue that's a short trip and frankly, they're probably right"

1 Comment
October 11, 2016
Read more about the article One at school. One home sick and one in a psychotic break. 
My thoughts

One at school. One home sick and one in a psychotic break. 

It's one of those days where I can actually step back and ask myself how the heck am I doing this?

0 Comments
October 10, 2016
Read more about the article Gavin’s not doing so well emotionally but there is a silver lining
Gavin / General Update / My thoughts

Gavin’s not doing so well emotionally but there is a silver lining

"With that in mind, I'm going to just hope for a nice balance of shit and rainbows... This is especially true in regards to Gavin's and all he's going through."

9 Comments
October 9, 2016
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I’d love to get a better idea of who all is here so I can better support everyone. If you’re a parent raising a kid with autism or any other disability, please listen up. I know how hard life is or how hard life can be. I know with everything going on it makes it even harder and scarier and more overwhelming. Parents raising kids with disabilities don’t need your unsolicited judgment. Disagree? Fine. But pretending to know what’s best for someone else’s child crosses the line. You don’t know their journey or the choices they face. Let’s uplift each other, not tear each other down.

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