I’m on my own tonight and I really need the boys to cooperate 

It was a good day at school for the boys. Everyone came home in a good mood and I really like these kinda days.   Elliott's homework is pretty much done for the week already and Emmett doesn't have any. This means the boys are pretty much free for the rest of the day.  Lizze will be in class for another couple of hours and won't get home until after the boys are in bed.  I'm trying to keep things calm because I have a conference call at 6:30pm for work and unless the boys are in a good place, that won't be able to happen.   I only need about 30 minutes of relative quiet in order to finish this call and I'm really hoping that the boys will…

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I’ve been running on fumes since last night

Today was one of those days where I was completely drained at the onset. Gavin's mission debriefing really took a great deal more out of me last night than I originally thought.  After getting the boys to school, I crashed for a little while. I was even too tired to get my walk in this morning.  I feel a little better now but Lizze is leaving for class which means Gavin has to come with me to pick up the boys. He's already trying to fill me in on a nightmare that Twilight Sparkle had last night or something like that anyway.  It feels like there's no escape from this... I know that sounds terrible but it's the reality of how I'm feeling right now. Gavin has asked me to…

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Sometimes it’s difficult to remain positive but this is what I do to prove it’s not impossible 

I'm going to bed tonight with mindset that when I wake up, the slate will be wiped clean. I'm going into the new day with a sense of I can totally do this.  It doesn't matter how positive a person is because when faced with the unending challenges associated with being an Autism parent, it can become difficult to remain positive.  That said, being difficult and being impossible are two very different things. While it may be difficult to focus on the positive, it's certainly not impossible. I feel pretty comfortable saying that because we have more than our fair share of challenge, heartache and pain.  I find that there's always something worth celebrating, at least on most days.  I'm really trying to focus on the positive and as a…

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Unfortunately, Gavin isn’t getting better and tonight’s appointment is proof of that

We met with Dr. Pattie tonight and one of the main topics was Gavin. He's officially been back on 800mg per day of Clozapine for 48 hours. While we haven't seen any improvements, we continue to see his side effects becoming more significant.   Gavin had been waiting all day to tell the three of us about his latest missions.  When it was time for him to share, he just unloaded on us.  He talked pretty much nonstop for over 20 minutes.   His adventures were more of the same. He's the indispensable hero that sees all and knows all. He uses his power to smite evil (I've been watching Supernatural, so that's my word not his) and reign over his Universe.  He told us about how he can glue…

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I’m really struggling with Gavin today

I confessed last night about how I'm not in the best of places. Today doesn't seem to be any different. Life in general is okay but I'm really struggling with Gavin.  When it comes to conversation skills, Gavin has three topics that he talks about: Food Video Games  His Super Best Friends It's not like it's on occasion, that I hear about this stuff.  It's as though he compulsively tells me about every thought that enters his mind. Those thoughts typically center around the above three topics.  I'm so grateful that he can speak. I'm grateful that he wishes to communicate with me. I'm even more grateful that he can communicate as well as he does. At the same time however, he's driving me crazy.  Yes, I know it's a…

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I love the sound of meltdowns in the morning :(

Emmett woke up in a really, really, really bad mood. I can't even talk to him without being screamed at.  As a result of finding myself overwhelmed already, I've put myself in a brief timeout and I'm trying not to let all of this unpleasantness, set the tone for the day.  I love waking up after not getting enough sleep and getting screamed at all morning by my youngest for reasons that known only to him.  😔

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Confessions: How I’m not coping well with my son’s declining overall health

So I've mentioned that I'm going through some things at the moment but never got around to saying exactly what those things were. This is the post I promised a few days ago. I'm sorry it took so long but it's not as easy for me to write lately. By nature I'm a positive person. I've got a wicked sense of humor and I enjoy laughing. Frankly, if we're being honest, it's that sense of humor that's mostly kept me from losing my mind on many occasions. For instance, I refer to Gavin's schizophrenic hallucinations in a manner that some may deem disrespectful but it's simply how I cope with all of this and the name is actually very appropriate. I've dubbed the friends in Gavin's world, his visibly challenged…

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My day started at 4am but it’s been a pretty decent morning 

The boys got off to school alright this morning. No major issue aside from Elliott getting up at 4am and wouldn't go back to bed. The boys were sorta crazy but we left for school on time so it couldn't have been that bad.  On the way home, Gavin and I hit the track and did our thirty minute walk before heading back home.   I'm really tired this morning but I'm in a pretty decent place.  All things considered, this wasn't too bad of a way to start a Monday morning. 

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