Read more about the article I need advice from Adult #Autistics or those with #SensoryProcessingDisorder 
Gavin / I Need Advice

I need advice from Adult #Autistics or those with #SensoryProcessingDisorder 

Okay folks, I've always been someone who's keenly aware of how Adult Autistics can be an absolutely amazing resource for parents of kids with Autism, like myself.  Today I'm reaching out to the Adult Autistic community, and or people with Sensory Processing Disorder. I have a question about my oldest with Autism.  My goal is to gain a better understanding of what he's experiencing, so I can better support him.  Gavin usually goes with me when I fill up our five gallon water jugs. These jugs have built in handles, to make them easier to carry. Some of the jugs have no grip on the handle, while others have a slightly textured grip to keep it from slipping out of your hand.  Gavin always complains about the water jugs with…

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July 7, 2017
Read more about the article She’s in a shitload of pain
Fibromyalgia / Lizze / My thoughts

She’s in a shitload of pain

The boys are officially gone and we are t-minus one hour until Lizze has to be at the doctors. They'll be gone until sometime tomorrow. I'm feeling a bit more energized own after hitting the treadmill for a bit.  I'm not sure what we're going to do tonight, because Lizze is still in a shitload of pain from the weather.  Maybe we'll pickup dinner and work on season 3 of iZombie.  Simply not having to worry about the boys is a huge, albeit temporary relief. ☺ 

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July 7, 2017
Read more about the article Lizze isn’t doing so good
Fibromyalgia / Lizze / My thoughts

Lizze isn’t doing so good

Lizze is definitely under the weather today because of the weather today. It's on and off storms, making life very painful for her to endure.  I'm hoping that she's feeling better as the day goes on, and after a long nap. It would be really nice for her and I to be able to do something, besides sleep, while the boys are gone.  If she's not feeling better, than the goal will be to make her as comfortable as possible, and maybe bring her dinner... ☺ 

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July 7, 2017
Read more about the article As an #Autism parent, I never take these for granted 
Autism Parenting Insight / My thoughts

As an #Autism parent, I never take these for granted 

It turns out that we're looking at another break today, and that's amazing. The boys will be going to Lizze's parents for the night, and we will get some time to ourselves.  This has been an unusual week in the sense that we're getting so much time off, but it's an absolute blessing.  Lizze and I have zero plans at this point, but that may or may not change. I'd really like to go for a nice long walk, but the weather is rather hit or miss today. We have storms in the forecast, and we'll have to see how things go.  The bottom line is this. We are incredibly grateful for the time off provided by both sides of our family. I know that not everyone gets breaks like…

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July 7, 2017
Read more about the article IVIG infusion supplies are late
Gavin / IVIG Infusion

IVIG infusion supplies are late

There's been a pretty major snag today. Gavin's IVIG infusion supplies have not yet arrived. It's been a few months since we've had any problems, and maybe they're out for delivery today, but it's put his infusion on hold.  The deliveries are somewhat unpredictable because they don't come out in the same day each month. Sometimes they're delivered early, sometimes they're late, and other times they're on time.  I have a call in but haven't heard back yet. For that matter, we still don't have his new sharps container that I ordered last week. I'm not sure what's going on.  The pharmacy policy is that expect your order, unless you hear from them.  I've not heard back from them, so everything should be okay, based on their instructions. 

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July 7, 2017
Read more about the article Optimistic about today
My thoughts

Optimistic about today

I'm super grateful that Elliott is still sleeping at 8:10 am. He's not been sleeping well for the last week or so, and he needs whatever sleep he can get.  I'd love to see him sleep in past 10 am if possible.  Emmett has already been up for awhile, as has Gavin. I woke about 7 am and I'm feeling tired but optimistic about today. 

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July 7, 2017
Read more about the article Sweet picture from our July 5th adventures
Family Time / Photography

Sweet picture from our July 5th adventures

I know these are a couple of days late but I wanted to share them anyway. On July 5th, one of my focuses was wearing my kids out, by keeping them busy all day long. It was dark from a perfect day but while Lizze was in class, I took the boys to the indoor playground and let them play for awhile. They ended up joining in a game of tag with the other kids that were there. It felt so nice to see them having fun with other kids in a playground. After Lizze arrived home from class, we went to the Garden Center as a family. The boys went exploring, and Gavin found several painted rocks, that he promptly re-hid somewhere in the giant garden, for others to…

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July 7, 2017
Read more about the article It’s fun to do weird things sometimes
General Update

It’s fun to do weird things sometimes

It's slated to be somewhat of a busy day. Gavin needs his IVIG infusion first thing in the morning, and then we have to go order his new glasses. We had to wait for payday to do that.  After we take care of all of those things, Lizze has two appointments around dinner time.  Her doctor is right by a Little Ceasars pizza and I'll probably swing by and grab one so the kids can eat while we're waiting. That's a super informal dinner but it's kinda fun to do weird things like that sometimes. The kids enjoy it and that's good enough for me. 

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July 7, 2017