Is anyone else nervous about the transition back to school? If so why? 

As the end of summer quickly approaches, I find myself apprehensive about the transition back to school.  I think Elliott will be okay but I'm really afraid of how this is going to go for Emmett.   All summer, Emmett has not worn anything on his feet but flip flops.   He will not wear socks period.  Even the ones I've had success with in the recent past, no longer feel right on his tiny little, sensitive feet.   I have no idea who this is going to work because Emmett hasn't even worn shoes since the last day of school.  He's not tolerating those either. I can't afford to buy him another new pair of shoes, only to have them feel funny after a couple of days.   This…

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The boys are having a really hard time sleeping tonight

Lizze and I were getting ready to go to bed around midnight, when Elliott walks down the stairs in a daze.  He's hungry and wants something to eat.  Before we have a chance to even answer him, Emmett comes dancing down the steps with a level of energy that should be straight up illegal at this time of day.  Elliott had been sleeping and woke up.  Emmett on the other hand, never fell asleep.   I figured the best chance of anyone getting sleep was to camp out in the living room.   It took a bit to get them to fall asleep but Lizze rubbed their backs and they were relaxed enough to lay down.  I played music and they both eventually feel asleep but it's already 2:30am...  Now…

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Sometimes I swear that life is out to bury us alive

It's been an exhausting day, full of repetitive questions, meltdowns and schizophrenic hallucinations. We also had a pretty awesome victory. The Good news first... Emmett graduated from his Functional Independence Group after 6 weeks and I'm so proud of him.  I'm also very grateful that he was given the opportunity to attend this awesome pilot program by Akron Children's Hospital. That's pretty much where the good news end because the rest is a mixed bag of good, bad and ugly. The rest of the day was spent listening to Gavin talk about his latest missions with his visibly challenged group of super best friends.  It's not that I don't want to listen to him but it's really hard to hear this because it's a massive reminder of how serious his mental…

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Congratulations Mr. Emmett, I’m so proud of you

I want to take a minute and call attention to Mr. Emmett's accomplishments today.  He graduated from his 6 week Functional Independence Group today. He had such a great time and made some awesome new friends. There were some really important things he learned during the last 6 weeks, most of which he refuses to apply to his life but I know he knows them.  Lol That being said, Lizze and I are so proud of him and can't wait to see more of what he's capable of doing .  More importantly, he's proud of himself.  ☺

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I turned Emmett’s therapy into a chance for one on one time with Elliott

Elliott decided he wanted to go with me to take Emmett to his last day of Functional Independence Group...  I was hesitant because Elliott doesn't do well having to wait and I'm already stressed out enough.   Lizze stayed back with Gavin because he's asleep....  While Elliott and I were waiting, I thought it might be nice to walk over to the Dunkin Donuts next door and grab a quick snack.  I saw this as an opportunity to spend some special time with Mr. Elliott.. ☺  It was a really good time and it made Elliott's day.  We had pretzel twists and some orange juice.   We have to keep it a secret from Emmett because he'll freak out but he's getting some special things at therapy today, so it…

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Feeling quite overwhelmed by my three kids on the #Autism Spectrum today and here’s why

The boys are out of control today.  It's like every single one of their proclivities are in full affect. I'd swear it was a full moon and I don't even know if I believe that the Moon can impact people in that manner. Gavin is off fighting a battle in another Universe and he seems to have been victorious because he was super excited to share that he had successfully removed the device from within Social.  Eggman and Zurg had planted this device in Sonic when they had him as a prisoner. Anyway, it's taken weeks for Gavin to figure out how to remove this device without killing Sonic.  Thankfully, he was able to remove it using the sacred song of the Gods of Mobious. If you are asking yourself…

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It’s a really big day for Emmett

As the title states, it's a really big day for Emmett. Today is the last day of his Functional Independence Group at Akron Children's Hospital. I'm really hoping that they decide to either extend this or offer a continuation down the road. Emmett loves this group and I know he's going to be sad that it's over. This should however, signal his return to Occupational Therapy every other week. He's also supposed to be reevaluated for Physical Therapy before school starts as well.  If you recall, he had met all his goals for Physical Therapy and as a result, he was taken off the schedule for the summer.  The idea behind this was to get a feel for what happens to the progress he's made, after no longer get being…

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Two months after my wife moved back home

I wanted to do a general update and share how things are going, since Lizze moved back home.  It's been roughly two months since we decided to put our family back together and it's been a journey.  When I say journey, I don't mean to infer anything negative.  Anytime your life takes a new direction, it's a journey.   Since the last time I spoke about this specifically, another month has passed and we've had even more time to sorta transition into this new family dynamic.  Overall, I think everyone is doing really well with this significant life change.   I think that the change is hardest on Lizze and at times, she's overwhelmed by all the little blessings in our life.  I can imagine the difficulty in going from…

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