Tag: Caregiver Burnout

We’ve arrived at @AkronChildrens Hospital

While the insane amount of never ending construction didn’t make it easy, we have arrived at Akron Children’s Hospital. Gavin’s all checked in and we’re waiting to be called back. It’s really a strange feeling being back after all this time. Between Gavin and Emmett, we’ve spent so much time in this amazing hospital but …

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I’m going to be doing this for the rest of my life and that’s scares the crap out of me

I love Gavin. I truly love Gavin. At the same time, the idea of having to deal with his challenges for the rest of my life is scary. I just dealt with a problem and he’s still upstairs freaking out. Here’s what happened. Gavin came out of the kitchen and told me that he needs …

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I feel like we’re off to a good start

The boys have been safely delivered to school and I’ve been to the track. I feel so much better after walking and I’m ready to take on the day. It was perfect weather for walking and while I had to push myself to go, I’m so glad I went. ☺ My Mom is going to …

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No sleep for those who desperately need it

I’ve been having a very difficult time sleeping for the past few nights. Sometimes it’s because Emmett wakes up and other times it because of my allergies. Last night I ended up on the couch in the living room because I was able to breathe better. Breathing better makes sleeping easier for me. The air …

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The last time we were here, we received devastating news

Today is going to be one of the biggest days we’ve had in awhile, at least as far as Gavin and his health are concerned. Gavin finally gets back into Gastroenterology. We’ve finally come full circle and I’ll explain why. It’s been awhile since he’s been seen and that’s only because we were basically overrun …

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I’m so tired of fricking #meltdowns

There isn’t anything I know of that can prepare some for the reality of Autism related Meltdowns. They’re awful for everyone involved, especially the person physically experiencing one. At this point in time, Emmett is the defacto meltdown maker in our house. Gavin’s making a comeback and that’s incredibly unfortunate because he presents with many …

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