Read more about the article Here’s what we decided in regards to the boys running today
Elliott / Emmett John / Family Fun / My thoughts

Here’s what we decided in regards to the boys running today

A few things have changed since my last post. (See here) We've found Elliott's pants, which is a good thing regardless, but it means he has something to wear to run in. Elliott has lots of pants but only one pair of wind pants cause he doesn't like wearing them. Anyway, the weather is still crappy but the boys are really motivated to push through this and frankly, I don't want to stand in their way. At this point in time, we look to arrive for the race at 1PM and meet everyone who's coming to cheer them on. One of the concerns we had when this race first came up was letting the boys run without one of us being there with them. There are a million things that…

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April 28, 2018
Read more about the article I’m so fricking stressed out this morning
Autism Parenting Struggles / Elliott / Emmett John / My thoughts

I’m so fricking stressed out this morning

The boys are supposed to be in a run this afternoon and I'm not sure what we're doing at this point. It's currently 40°F and it's been raining all night. The roads are drying up at this point but it's still very cold out. Everything was free so it's not like we're losing any money. I'm worried for a couple reasons. Emmett doesn't like getting his feet wet Emmett will only wear crocs and no socks It's cold, cloudy and raining on and off Elliott cannot find his wind pants If Emmett's feet get wet, it's going to get ugly There are a few people coming with us and I don't want to cancel at the last minute because we're holding out hope for something that's not practical At the…

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April 28, 2018
Read more about the article The boys are running in their 1st race today
Elliott / Emmett John / My thoughts

The boys are running in their 1st race today

The boys will be participating in a kids run this afternoon. It's a little less than two miles but it's perfect for kids. My sister is going to run it with them and we will be there to cheer them on as they cross the finish line. This is just the first of at least two runs they're going to be doing between now and the end of the summer. The only thing that will interfere with this is if it rains and it's supposed to rain. As much as they want to do this, they hate getting wet even more.. 😁

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April 27, 2018
Read more about the article We Came – We Saw – We Conquered
Family Time / My thoughts

We Came – We Saw – We Conquered

After all we went through to make it to this bloody movie today, it was worth it. The kids did great and sat mesmerized for the entire two hours and twenty minutes. Avengers: Infinity War was absolutely amazing. It was nonstop action from the very first scene and that helped to keep their attention. I won't talk about the movie other than to say that this isn't the last movie. I loved hearing the boys share their theories as to what happened, why it happened and what will happen. I don't happen to agree with their theories but I love being witness to their brilliant brains going to work.. ☺

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April 27, 2018
Read more about the article How #Autism can complicate even the little things
Autism Parenting Struggles / Emmett John / My thoughts

How #Autism can complicate even the little things

What follows is an example of how complicated Autism can make things at times and lengths we must go to work through these complications.. The Autism Dad household is full of nerds. We love video games, science and especially Marvel Comics. It's only natural that we are drawn to the Marvel Universe films and we are.. This all took place on Thursday (yesterday). I thought it would be nice to surprise the kids by taking them to see the new Avengers movie on opening day. I went ahead and ordered tickets for Friday at 3:45 PM. On the way home from school yesterday, it occurred to me that surpring them may not be the best idea, especially when it comes to Emmett. With that in mind, I told the kids…

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April 27, 2018
Read more about the article Gavin’s is struggling and it’s heartbreaking
Gavin / IVIG Infusion / My thoughts

Gavin’s is struggling and it’s heartbreaking

Gavin's having a rough morning. He really struggled to setup his IVIG infusion today. At one point, he ran into what he perceived to be a problem and couldn't work through it. Part of prepping his IVIG infusion, requires him to draw up solution into a giant syringe. It's important to remove any air bubbles from the solution because it will interfere with the infusion process. Normally, he pushes the bubbles out before he removed the needle from the syringe but today he removed the needle first. He got upset with himself and was going to just leave the bubbles there because he'd already disposed of the needle. I told him he can't leave the bubbles, so he proceeded to open a second needle and I had to stop him…

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April 27, 2018
Read more about the article A Major Announcement
Announcements / My thoughts

A Major Announcement

I'm going to make this brief because I'm exhausted and need to get to bed. For a long time now, I've been wanting to restore my original blog Lost and Tired because that blog contains thousands and thousands posts that date back to the very beginning of our story. I haven't gotten around to bringing this back because frankly, I need to completely rebuild the site, clean up the old database as well as upload ten gigs worth of media, and that's huge PITA. Thursday morning, I finally decided to bite the bullet and rebuild the site. It was a project and a frustrating one at that but I got back up. It's a very basic site and there will likely be some things that are missing, namely YouTube videos…

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April 27, 2018
Read more about the article #Autism is NOT one size fits all
Inspirational Posts / My thoughts

#Autism is NOT one size fits all

Being an Autism parent isn't easy. In fact, it's considered to be among the most difficult things a human being can do. Every person with Autism is unique in their own right. They each have their own unique personality, likes, dislikes, strengths and weaknesses. In other words, no two people with Autism are the same. As a result of this, every Autism family is different as well. There are similarities of course, but Autism isn't a cookie cutter diagnosis, and neither is Autism parenting. I have three kids with Autism and while they share the same diagnosis, they are very different from one another. Some families, like mine, face very difficult situations, that make life a struggle at times. Other families can be far less impacted and if you didn't…

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April 26, 2018