Tag Archives: Ehlers Danlos




Lighting the way for parents facing similar struggles

I’m really trying to keep up with writing. When I first started, almost 10 years ago, you could literally follow us along our journey because I wrote constantly. I don’t do that so much anymore but I’m trying to find a middle ground between exhaustion, helping others, my need to… Read more »







My wife and I separated 4 years ago today – we learned things the hard way but you don’t have to

October 14, 2014 was one of the hardest, most painful days of my life. It was the day my wife and I separated. During that time, life was unbelievably difficult for everyone, especially the kids. We very much made it a point to do right by the kids and make… Read more »







The heartbreaking reality of how trauma has seriously impacted one of my kids with #Autism

I’ve been meaning to write this but the idea of doing so has been too overwhelming. There are a number of reasons for that but the main one is that I’m struggling with my own depression at this point and many things have me overwhelmed. I’m going to try and… Read more »







A major update on the mass in Gavin’s forearm

Real quick, I wanted to share a bit of good news. We heard back from the doctor today in regards to the mass in his forearm. The doctor sent us a message via My Chart and explained the results of the ultrasound. She said it appears that the mass consists… Read more »







#Selfcare is a journey but it’s worth the effort

I know it’s not Wednesday but I forgot to share this because of all that has gone on this week.. Truthfully, I forget to share on most Wednesdays. ☺ Anyway, as you know, I’ve been working on weight loss this year. I had unfortunately, reached 340 lbs during the early… Read more »







I feel like I’m drowning

      4 Comments on I feel like I’m drowning

I’m not in the best place tonight. Everything that’s going on around me is slowly but surely wearing me down and burning me out. Life can be difficult to cope with sometimes and depression doesn’t help matters at all. I can get stuck in a cycle of repetitive thinking and… Read more »







An example of how repetition helps Gavin learn or maintain skills

It’s been a difficult day because Gavin is definitely struggling but it’s sort of a mixed bag. I’ll give you an example. I mentioned to him last night that he needs to shave because if he’s going to grow facial hair, he needs to maintain it. His goatee comes in… Read more »


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