Tag Archives: Ehlers Danlos




Things have gotten so much more complicated

Before I go into anything, I want to begin by saying that Gavin’s echocardiagram looks good. Everything appears to be normal and that’s really, really good news. Gavin did really well with the testing and was very cooperative. He even tried to carry on conversations with the staff. It was… Read more »







General Update: The Good News and The Bad News

I’ve been spread pretty thin this week and I haven’t written much at all. I’m trying to refocus a bit and get back into the habit but frankly, it seems overwhelming sometimes. I’ll do my best to get back on track.  There are a few things that I’d like to… Read more »