Tag Archives: PFAPA




It all happens at noon today

      No Comments on It all happens at noon today

It’s already been a hectic morning but I did receive the call I’ve been waiting on from Emmett’s pediatrician. The long and short of things is that Emmett will be seen at noon today. Lizze and I dropping Gavin off with my Mom on the way. We can’t risk exposing… Read more »






He’s NOT faking this

      1 Comment on He’s NOT faking this

Emmett isn’t feeling well again this morning and rather than encourage him to go to school and at least try to see if he’ll feel better, we’re keeping him home. The main reason we’re keeping him home is because we’d have to pull him out anyway for his appointment this… Read more »






I hate feeling powerless

      No Comments on I hate feeling powerless

It’s now 1:47 AM and Emmett has just now fallen asleep. We’ve been trying to help him for hours upon hours. He has a really bad tummy ache and feels like he’s going to puke. This is stressful for any kid but it’s especially so with a kid like Emmett…. Read more »






He’s 18 years old on the outside but not on the inside

Gavin’s having a rough time today. He’s eighteen years old now but can’t be treated or managed like a typical, freshly minted adult. Unfortunately, Gavin’s cognitive ability is significantly lower than his chronological age. Until we have his new NeuroPsych testing done this summer, we won’t know exactly how much… Read more »






There’s way too much shit to worry about as a special needs parent

I’ve been playing a very frustrating game of phone tag with the pharmacy this afternoon. I need to make sure they either look out for a fax from the lab or call and have it faxed over because Gavin needs his refill tomorrow. I cannot stress enough that Clozapine is… Read more »

1 2 3 8