Hoping to end the week on a positive note

I woke up this morning, feeling like I hadn't slept at all.  The boys did pretty well last night, in the sense that they slept in their own beds and did so through the night.  They did however, get up exceptionally early. Aside from Gavin's IVIG infusion, we don't have anything scheduled for today. My hopes is that it will be a quiet day for all of us because it's been a really long week and I'd love to end things on a calm, relaxed and meltdown free note..

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We made a difficult decision about Gavin’s current emotional status

I meant to publish this update the other day but I've been a bit distracted. Lizze and I met with Dr. Pattie on Tuesday night to discuss what we should do in regards to Gavin's current psychotic break.  The reality is that there is very little that we can do, aside from possibly adjusting his meds. The decision basically revolves around whether or not to increase his Clozapine dose. While this may not seem like a tough decision, it really is for a number of reasons. Clozapine is not a medication to be messed with, if it can be avoided.  That being said, it's also the only medication that has a history of actually working on Gavin.  It either quiets the voices or makes them silent all together. Gavin is…

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Today’s been a day filled with overstimulation and meltdowns 

It's been a pretty chaotic day on my end.  We had an awesome day day yesterday but the kids are paying the price for it today and subsequently, so are we. The boys, namely Elliott and Emmett, have been so beyond hyper and overstimulated today, I've resigned to the fact that today is probably just going to be a wash. We've had a few smaller meltdowns today, which is to be expected after a jam packed day of excitement yesterday. Lizze and I have taken turns napping today because we are both exhausted.  It's actually worked out pretty well, in the sense that at least one of us is awake and semi-coherent. This has successfully prevented the kids from taking over the world.  Lol Anyway, it'll be bedtime soon and…

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We have a day filled with absolutely nothing and I love it

Today is the first day this week that we have absolutely nothing to do.  This will work out just fine because I'm sure the boys and in truth, Lizze and I as well, will need the day to decompress from a rather chaotic week. I plan on doing some writing and maybe taking the boys Pokémon hunting. The whole point is that we're shooting for low key and stress free. Who knows if that's even possible but that's certainly the goal..  ☺

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The crew from @vivintgivesback flew out to spend the day with the @the_autism_dad family and it was awesome

Today was amazing.  For those tardy to the party, the crew from Vivint Gives Back, flew all the way from Utah to spend the day with my family. There was a great deal of stress and anxiety leading up to this, simply because trying to get the house presentable can present many challenges.  I don't need to explain that to many of you because you face many of the same daily challenges we do. The team from Vivint arrived on time and our day was soon underway. To put things simply, they were here to film a documentary or sorts, featuring both myself and my family.  This was done for a few reasons, but the biggest and most important were to raise awareness for Autism, as well as for the…

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The moment has finally arrived

The moment has almost arrived and I think we are finally ready for Vivint to come to our house.  I'm way more nervous that I probably should be and to be completely honest, I'm going on about 2 hours of sleep. Everyone is dressed and in a good mood.  That in and of itself is a massive blessing. I'll let you know of how it goes and we'll probably have lots of pictures to share.  Wish us luck.....  ☺

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We made some awesome progress today

We've spent the majority of the day so far, cleaning and straighting up. My Mom came over to help and I think we're pretty much done.  There's a few things left to do but nothing major. Gavin's slept for most of the afternoon thus far.  That's a bit strange and makes me wonder if he's sleeping well at night.  Normally he'll take a nap for about an hour or so after taking his morning meds but today he was out for several hours. I'll have to go back and check my alerts to see how many times he got up last night. I know of several times for sure but he seemed to go right back to bed. Anyway, he slept for awhile today. Emmett spent hours and hours just…

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