Holy Shit…. The boys have the next 5 days off from school O_o

The boys seem to be dealing with an upper respiratory thing that's apparently going around the school.  Elliott was coughing last throughout the night and poor Emmett is so plugged up, I can hear a high pitched whistle noise when he breaths through his nose.. When I called them off this morning, the principal was saying that it's going around the school.  I'm gonna get them on some benadryl after they eat and hopefully that will help to clear them up a bit.  The oh shit happened when I realized that the boys had a 4 day weekend starting tomorrow.  That means with today added to that, they're gonna be home for the next 5 days... I love my kids more than life itself but I also like my sanity…

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A few things I did right today

Rather than focus on what didn't go right today or the things I failed to accomplish, I thought maybe I could talk about a few of the things I did right.. For starters, I dragged myself out of bed this morning and while I was exhausted I had a good attitude.  ☺ I managed to get Emmett's shoes on in a way he found acceptable and did so on my first try.  The tooth fairy forgot to show up for Elliott last night and I was able to pull off a special delivery so the tooth fairy was able to save face with my middle minion.  😉 Emmett made it to physical therapy on time and I remembered to bring Elliott's tablet so he was able to entertain himself instead…

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Today’s #Autism Glimmer: Emmett kicked butt on physical therapy today

Emmett did awesome in physical therapy today. That's not surprising really but it is worth sharing because it's today glimmer.. There are a million things that go on each day and not all are pleasant.  When the good ones come around, I like to hop on that scooter and ride it as far as I can.... Great job Emmett... You brightened my day by seeing all you can accomplish.  ☺

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It’s been a pretty good day for me

I'm struggling with Gavin's diagnosis and it's really hard for me to focus in anything else right now.  That being said,  I did get the kids off to school, mostly on time and I walked 3+ miles afterwards.  I had absolutely no desire to walk but those are the days when I truly need to force myself.  I'm glad I did but it really drained my tank for the rest of the morning/afternoon.... ☺ I feel pretty good that I accomplished that because it makes me feel a tiny bit productive today. . ☺ I take what I can get. . ☺

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Gavin’s spent 3 hours with needles in his leg

Admittedly,  I'm a bit overwhelmed and preoccupied with this whole Childhood Disintegrative Disorder thing.  Some of you have been asking about Gavin IVIG infusion yesterday because I hadn't yet spoken about how the new infusion site went. So here's the deal... Let me start off by saying that Gavin is the bravest kid I've ever met.  The things he endures on a daily basis would be consider intolerable by most adults and yet he never complains about his lot in life.  Yesterday's IVIG infusion was the first attempt at infusing his donor immune system into his thigh, rather than his belly.  In the last 2.5 years of him receiving these at home,  he's had to endure over 520 needles being placed into his stomach area.  That number is low because…

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It’s a new day and time to get the boys off to school

So it's a brand spanking new day and it's time to get the boys off to school.  Elliott's in rare form this morning and seems to have made it his mission in life to push Emmett's buttons.  I've already had to break up a few altercations between the two of them. That being said,  they have been relatively cooperative and I'm super grateful for that. ☺

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Gavin has been officially diagnosed with Childhood Disintegrative Disorder #CDD

It's been a really long day and I haven't felt like writing tonight because I'm trying to process everything. I was going to do a Periscope broadcast and I probably will tomorrow at some point because sometimes it's easier to simply speak. I'm going to try to write this but my brain is sorta on overload at the moment,  so please understand that I'll write something more coherent later. Anyway,  I didn’t want to talk much about this until I had spoken to my family first. I spoke to Lizze and most of my family.  I'll try to talk to Lizze's Mom again at some point to explain what's going on as well. I just didn't want people reading about this before I could tell them myself. The image above…

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