Category: Akron Children’s Hospital



Please keep Gavin in your thoughts and prayers

Everything is a go and I’m off to bed cause we have to be up and moving around 4 AM. I’m not looking forward to that at all but I’m grateful it’s actually happening that early because Gavin won’t have to go without eating any longer than he has to…. Read more »



Gavin’s scheduled for surgery tomorrow but did we get everything worked out?

I need to get you all caught up on Gavin’s status and whether or not his scheduled surgery is a go for tomorrow. I couldn’t really share anything until this afternoon because I didn’t get the final word until a few hours ago. There are three things that needed to… Read more »



Here’s how we figured out the legal problems after Gavin turned 18

I was finally able to connect with the person in the legal department at Akron Children’s Hospital today, that I needed to speak with. We had a somewhat lengthy conversation about Gavin and how we should proceed with the legal quandary of him turning 18 years old, being legally incompetent… Read more »



Gavin’s surgery is now uncertain

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Gavin’s supposed to have an endoscopy and a colonoscopy done at Akron Children’s Hospital next week. They consider this surgery and refer to it as such, so I’m doing the same. I received a phone call this morning from his Gastroenterologist. This is the doctor who ordered the non-urgent but… Read more »



My #1 take away from today

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I’m going to sum things up for today pretty quickly because I’m really tired and hope to actually sleep tonight. My number one take away from today is pretty straightforward but also very positive. I spoke with legal at Akron Children’s Hospital and seem to think that gaining medical power… Read more »



Things have gotten so much more complicated

Before I go into anything, I want to begin by saying that Gavin’s echocardiagram looks good. Everything appears to be normal and that’s really, really good news. Gavin did really well with the testing and was very cooperative. He even tried to carry on conversations with the staff. It was… Read more »


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